Mold Stories

 

Jennifer Brea in the movie “Unrest.”

 

By Lisa Petrison, Ph.D.

Following are the stories of more than 50 individuals who have been reported to have experienced chronic health effects subsequent to being exposed to mold problems.

For more stories about mold illness and mold avoidance, see the section of the Paradigm Change website on How I Survived Toxic Mold.

Another article is called 12 Celebrities Whose Lives Were Impacted By Mold.

 

Dave Asprey 12

Dave Asprey

Dave Asprey is a Silicon Valley entrepreneur who spent 15 years and $300,000 recovering from illness experienced subsequent to a Stachybotrys exposure in his home. His Bulletproof blog essays and videos frequently focus on the debilitating effects of toxins in food, and his coffee and other food products are guaranteed to be low in mycotoxins. He also frequently has addressed the topic of environmental toxic mold. His documentary movie on the the negative effects of environmental toxic mold illness – titled “Moldy” – was released in June 2015.

 

James Baber (2)

James Baber

James Baber is a successful executive management consultant who discussed his experience of being made sick by toxic mold in an interview with Dave Asprey on Bulletproof Radio in early 2015. The exposure was in a brand-new, LEEDS-certified, very expensive apartment in New York City overlooking Central Park. After many specialists failed to determine the cause  of his health issues, James figured it out himself. He is now much recovered.

 

Melinda Ballard Headshot

Melinda Ballard

The first person to bring the dangers of household toxic mold to mainstream attention was Melinda Ballard, who received a court judgment of $32 million (including damages) against her insurance company in 2001. Melinda (a former PR executive), her husband and their young son all were made very sick by the mold in their luxurious mansion in Dripping Springs, Texas. The family’s story was featured in The New York Times in 2001 and on the CBS news program 48 Hours in 2002. Melinda Ballard died in 2013 at age 55, of causes that were not publicly disclosed.

 

Alethea Black

Alethea Black is an award-winning fiction writer who became ill subsequent to a mold exposure in her home. She wrote about her experiences attempting to recover from her health issues in a fictionalized memoir called You’ve Been So Lucky Already and in an essay called “How To Lose Everything In Twelve Easy Steps.”

 

Big Edie and Little Edie Beale

Big Edie Beale and her daughter Little Edie Beale were the eccentric and reclusive aunt and cousin of Jacqueline Kennedy Onassis. They were featured in the classic documentary “Grey Gardens” as well as in two follow-up films, “The Beales of Grey Gardens” and “That Summer.” They also have been the subjects of a Broadway musical and an HBO film starring Jessica Lange and Drew Barrymore. The question of whether and how the Beales may have been affected by the large amounts of mold reported to have been present in the decaying East Hampton mansion where they lived during the early 1970’s is discussed in the Paradigm Change blog article, “Did The Mold At Grey Gardens Affect Big Edie and Little Edie Beale?”

 

Kurt and Lee Ann Billings

Kurt and Lee Ann Billings

Kurt and Lee Ann Billings are journalists who became gravely ill from a mold exposure while living in New Orleans immediately subsequent to Hurricane Katrina in 2005. They wrote about their recovery experiences and about the topic of toxic mold in general in a book, Mold: The War Within. They say that they are now recovered from their illness.

 

Jennifer Brea

Jennifer Brea was a Ph.D. student at Harvard University when she became disabled with ME/CFS. Some of her experiences with mold avoidance – including spending two weeks camping in the desert near Moab and then living in a tent in her backyard upon her return home to New Jersey – are featured in her award-winning documentary film “Unrest.”

 

Erin_Brockovich (2)

Erin Brockovich

Environmental activist Erin Brockovich revealed to the world her own environmental problem when the home she purchased near Los Angeles turned out to be full of Stachybotrys. She received a settlement of more than $400,000 in 2003 to clean it up. The story was covered by CBS News and by ABC News.

 

Jane Brody (2)

Jane Brody

Jane Brody is a longtime health reporter for The New York Times. In 2014, she wrote a story for the paper called Don’t Catch What Ails Your House, detailing mold problems that her family had experienced with their vacation home in the Catskills. She said that her husband was especially sensitive to the mold and experienced severe fatigue every time he visited, and that her sister-in-law got headaches and sinus problems from it.

 

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Kathryn Chastain-Treat

Kathryn Chastain-Treat became very ill almost immediately after starting a new job, even though her colleagues in the building were not nearly as affected. Her book, Allergic to Life, discusses her subsequent severe hyperreactivities to a toxic mold as well as to a wide variety of chemicals. She also blogged about her experiences. Kathryn died following a massive stroke in December 2014.

 

Trina Clark1

Trina Clark

Trina Clark was working as a very popular QVC model when she suffered from a toxic mold exposure at work, losing her health and her career. She became disabled in late 2009 and since has been working hard to avoid mold and move toward recovery. This video tells her story. (Photo credit: Nikicham Photography/Shannon McMahon.)

 

Jared

Jared Dussault

Jared and his family were made sick by toxic mold in their home when he was in early high school. After moving out of the home and pursuing treatment, Jared worked to draw attention to the problem of mold by speaking about his family’s experiences to local government officials in their town of Naples, Florida. Discouraged about his illness, Jared took his own life on August 16, 2015. He was only 17.

 

The Fabry Family

Andrea Fabry, her husband and their nine children all were made very ill (each in different ways) as a result of living in a moldy Colorado home. The family moved to a small rental house in a rural area of Arizona in 2008, leaving all their possessions behind. Andrea’s natural living blog It Takes Time details the family’s experiences as they have moved back toward health. She also shares information about healthful living choices on her not-for-profit website momsAWARE and in monthly Toxic Talk Tuesday broadcasts with her husband, radio talk show host Chris Fabry. The family’s mold nightmare was featured in a news segment on the Christian Broadcasting Network (CBN) in 2009. Their Just So line of super-pure soaps and other products is designed specifically for people with chemical sensitivities.

 

Scott Forsgren 1 (2)

Scott Forsgren

Scott became suddenly and violently ill with neuroimmune disease in 1997.  Over the next decade, he several times thought that he was on the road to permanent wellness only to relapse. In 2008, a variety of blood tests as well as the ERMI revealed that he was living in an apartment contaminated with substantial amounts of Stachybotrys and other molds, and he moved out. He says he currently is 90% recovered and credits a wide variety of treatments as having been helpful to him, with mold avoidance as “an important piece of the puzzle.” Scott has frequently written about toxic mold on his website, Better Health Guy. He also wrote an article about treatment of toxic mold illness for the established alternative medicine publication Townsend Letter.

 

Charlotte Perkins Gilman

Charlotte Perkins Gilman

In 1899, author Charlotte Perkins Gilman published a short story called The Yellow Wallpaper. Gilman suffered from neurasthenia, a Victorian-era condition that is thought by many doctors today to have been a version of ME/CFS (though unfortunately misattributed to psychological rather than physiological causes). Many people who read this story come away with the belief that the narrator was being affected by toxins from mold growing under the wallpaper in her bedroom. Take a look at it and see what you think.

 

SONY DSC

Bianca Jagger

Actress and human rights activist Bianca Jagger did battle for a number of years with the landlord of her rent-stabilized New York City apartment, which she said had a severe toxic mold problem that made her seriously ill. New York Magazine covered the story in 2004. In 2007, the The Washington Post reported that a court decision focusing on Jagger’s non-status as a permanent resident of the U.S. had resulted in her being evicted from the apartment and forced to pay back rent and her landlord’s legal fees. More details of her health issues are included in the introduction of Dr. Ritchie Shoemaker’s book Mold Warriors.

 

Erik Headshot (2)

Erik Johnson

Erik Johnson first started focusing on the health effects of mold in buildings while a student at Truckee High School (later an internationally recognized illness cluster spot) in the 1970’s. Since 1984, he has been working to draw attention to the role of toxic mold in the disease that the U.S. government now calls “ME/CFS.” He is the author of full chapters in Dr. Ritchie Shoemaker’s books Mold Warriors and Surviving Mold, as well as numerous blog articles. His story is presented in the book Back from the Edge, and his approach to mold avoidance is summarized in the book A Beginner’s Guide to Mold Avoidance. A collection of his writings on mold avoidance is presented in the book Erik on Avoidance.

 

Klein Tent

Dr. Joseph P. Klein, M.D.

Joe Klein, an orthopedic surgeon, became hyperreactive to tiny amounts of Stachybotrys toxins after a bathroom renovation in his southern California home in the early 2000’s uncovered a colony of the mold growing inside the wall. He lived in a tent in his backyard for a week, then abandoned his house and possessions and stayed in 40 different hotel rooms attempting to get clear of the toxins. He also became hyperreactive to smoke, interfering with his ability to work in the operating room. More than a dozen years later, he continues to do well as long as he scrupulously avoids certain mold toxins and smoke. His website (developed in 2001-2002 and now archived) details his experiences.

 

Chris Kresser 1 (2)

Chris Kresser

Chris Kresser runs a top-ranked biohacker health site focusing on ancestral health, Paleo nutrition, and functional and integrative medicine. He discussed his own mold-related health issues in 2015 in a video interview with Dr. Ritchie Shoemaker and in an article called “Five Things You Should Know About Toxic Mold Illness.”

 

Jeri McClure Kurre

Jeri is an ME/CFS patient who began pursuing mold avoidance in 2011 with a tent camping trip to Death Valley. In 2012, she presented her recovery story to the CFS Advisory Committee (to the Department of Human Health & Services). She says she now is basically recovered from her illness.

 

Kathleen Manganaro

Kathi became disabled with ME/CFS when working as a speech therapist in a noticeably moldy school that she knew bothered her. She then became aware of her hyperreactivity to toxic mold and began avoiding it. She presented her testimony to the CFS Advisory Committee in 2011.

 

Sara Riley Mattson

Sara Riley Mattson is a musician who began pursuing mold avoidance to address her chronic illness issues in 2015. Some of her avoidance experiences are described in her album Envy of the Agile Heart and her book Camp Like A Girl.

 

Ed McMahon

Ed McMahon

Ed McMahon (longtime co-host of “The Tonight Show”) received a $7.2 million settlement from his insurance company in 2003 to pay for property and health damages incurred as a result of improper remediation of mold issues after a pipe burst in his 8000-square-foot Beverly Hills home. McMahon said that toxic mold spread throughout the home, sickening both him and his wife and killing their dog, Muffin. The LA Times and many other news outlets covered the story.

 

Giles Meehan

Giles Meehan acquired myalgic encephalomyelitis (M.E.) shortly after graduating from the University of Cambridge and starting work in the U.K. as a structural engineer. He was sick for many years and then after recovering some of his health developed a well-respected video series called “Get Well From M.E.” He attained further health improvements after starting mold avoidance in 2012 and released two videos about the topic in 2013 and 2014.

 

Dr. Joseph Mercola and Erin Elizabeth

Bestselling author and popular natural health blogger Joe Mercola became interested in the topic of toxic mold after he spent $30,000 remediating a problem with it in his own home. He has posted several articles and videos on the topic, interviewing experts such as mold illness physician and researcher Ritchie Shoemaker; toxicologist Jack Thrasher; and authors/mold victims Kurt and Lee Ann Billings. His partner Erin Elizabeth has discussed her belief that some of her own health problems may be related to mold issues on her popular Facebook page Erin at Health Nut News.

 

Brittany Murphy and Simon Monjack

Actress Brittany Murphy died in December 2009 at age 32 of a flu-like illness caused by Staphyloccoccus aureus, a very common bacteria that a healthy system should be able to keep in check. Five months later, her husband Simon Monjack died of the exact same thing. It later was revealed that their house had a very severe toxic mold problem, and a forensic pathologist suggested that it was reasonable to think that the mold likely was a factor in the deaths.

 

Jill Neimark (3)

Jill Neimark

Journalist Jill Neimark (who has suffered from mold-related illness, chronic Lyme disease and MCS) became ill while living in a particularly bad apartment in New York City. In 2014, she published a thought-provoking essay in Aeon (an online literary magazine) about how she was changed for the better both physically and spiritually as a result of several years of frequent tent camping in order to avoid small amounts of toxic mold as well as chemical toxins. Jill is a contributing editor to Discover magazine and also is a published poet, novelist and children’s book author.

 

Ted Shemane Nugent

Ted and Shemane Nugent

Rock musician Ted Nugent, his wife Shemane and their son Rocco all lived for many years in a Stachybotrys exposure in their Michigan home. Finally in 2003, after they all were quite ill, they figured out what the problem was and moved away, leaving every single one of their possessions behind. Nearly a decade later, Shemane (a fitness instructor, screenwriter and TV show host) began discussing her family’s experiences with toxic mold.

 

Olivia Paregol

 

 

Fire Cure

Steve and Karen Porath

The Poraths got so fed up with the mold in their Foresthill, California, home that they arranged to have the fire department burn it down – leaving all their possessions (even their son’s baby book) inside. The home was found to have massive amounts of Stachybotrys mold and dangerous bacteria, due in part to faulty pipes spewing sewage underneath their home. The Poraths blamed their son’s developmental delays and their own health problems on the microbial growth. The Sacramento Bee (pictured) as well as People magazine and The Washington Post covered the story in 2001/2002.

 

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Julie Rehmeyer

Journalist Julie Rehmeyer – who described herself as nearly recovered from M.E. – has written about her experiences with mold avoidance in The New York Times, in the Washington Post, and in a Paradigm Change blog article. She described her experiences moving toward recovery in more detail in a Health Rising interview.

 

Bryan Rosner

 

 

Andrea Run

A.M. Runyan

A.M. Runyan first started experiencing health symptoms while in high school. Her health deteriorated dramatically soon after she graduated from college, subsequent to a Lyme infection and an exposure to a very moldy building. In Spring 2013, she moved from Massachusetts to the western half of the U.S. and began telecommuting to her existing job for health reasons. She is the author of the book Gifted and Sick, which focuses on the unique challenges that especially high-functioning people face when they become afflicted with chronic multisystemic illnesses. She also has a treatment website.

 

Suzanne Alan

Suzanne Somers and Alan Hamel

Best-selling health author and actress Suzanne Somers wrote extensively about the dangers of toxic mold in her newest book, Tox-Sick: From Toxic to Not SickSuzanne and her husband both became very ill a number of years ago after moving into a luxurious rental home that turned out to be filled with Stachybotrys – he experienced severe neurological problems and she contracted the fungal infection Valley Fever (misdiagnosed as cancer). Later, Suzanne’s granddaughter became very sick from a mold exposure and subsequent Lyme infection. After getting away from the mold exposures and detoxing intensively for an extended period of time, all three are now much improved. Suzanne previously shared an online bonus chapter about mold for her book Bombshell and also later blogged about the dangers of toxic mold subsequent to Hurricane Sandy. More links can be found on this page of the Paradigm Change website.

 

Pat Sullivan 1

Pat Sullivan

Pat Sullivan is a software entrepreneur and creator of the best-selling ACT! selling contact manager program. A longtime sufferer of chronic illness, he published a book called Wellness Piece by Piece: How a Successful Entrepreneur Discovered the Pieces to His Chronic Health Puzzle in 2005 and also founded the supplement company Jigsaw Health. Subsequently he concluded that mold illness was a substantial part of his health issues and blogged extensively about the topic. He now is feeling healthy and living a normal life, he reports.

 

meghan-trainor

Meghan Trainor

Singer-songwriter Meghan Trainor reported missing almost three years of school starting in sixth grade due to mold in her school in Nantucket, Massachusetts. Part of her family ultimately moved three hours away so that she could resume her schooling.

 

Joey Indoors 1

Joey Tuan

Joey became very ill with sudden-onset M.E. just after graduating from UC Berkeley and starting work as a business consultant. He is the co-founder of HealClick, a forum for patients with chronic neuroimmune disorders, and has reported improvements in his symptoms as a result of living in a mold-resistant trailer in the southwestern U.S. desert. Information about his story is available in this Forbes article and in this Health Rising blog post. Joey also wrote a popular blog article on how he converted a cargo trailer into a mold-safe residence.

 

Lucy Wicks

 

 

Almanzo and Laura Ingalls Wilder

 

 

Michael Roland Willias

Michael Roland Williams

Michael Roland Williams had graduated from the University of Texas at Austin and was living in Dallas when he was hit with a life-changing toxic mold exposure. His film Black Mold Exposure – which includes interviews with mold experts and other mold patients – was released in 2009.

 

PARIS, FRANCE - JUNE 08: Serena Williams of United States of America poses with the Coupe Suzanne Lenglen after victory in the Women's Singles Final match against Maria Sharapova of Russia during day fourteen of French Open at Roland Garros on June 8, 2013 in Paris, France. (Photo by Clive Brunskill/Getty Images)

Serena Williams

Tennis champion Serena Williams – who had been suffering from bouts of fatigue and periodic viral infections that have interfered with her play – blogged in 2013 about a major mold problem in her southern Florida home. In Spring 2015, she purchased a brand-new home in Palm Beach Gardens.

 

Jonathan Wright

Jonathan Lee Wright

Jonathan Wright was working as a professional photographer when he became ill as a result of living in a moldy home in Colorado in 2000. He recovered his ability to function as a result of practicing mold avoidance with a camping lifestyle. He gave a speech to the U.S. House of Representatives during a staff press briefing supporting Mycotic Disease Awareness Week in 2004, and his story was written up in the Denver Post. He also is profiled in Dr. Ritchie Shoemaker’s book, Mold Warriors.

 

Kourtney Kardashian with her children.

Additional Celebrities

Other well-known individuals who have made news over issues related to mold infestations have included Jennifer Aniston, Lou Ferrigno, Star Jones, Michael Jordan, Kourtney Kardashian, Gwyneth Paltrow and Katrina Parker. 

 

Lisa Petrison is the executive director of Paradigm Change.

 

Links on this page are in orange (no underlining).