Following is a list of discussion forums related to the topic of toxic mold illness or mold avoidance.
MOLD AVOIDANCE GROUPS – Facebook
Following are groups that have the stated mission of discussing issues related to the approach to mold avoidance developed by Erik Johnson and summarized in the book A Beginner’s Guide to Mold Avoidance.
This group exists to explore the application of Erik Johnson style mold avoidance or biotoxin evasion strategies to the lives of those who have the severe form of ME/CFS. In particular, it seeks to support patients and their caregivers in attempting to apply mold avoidance strategies to the lives of those who are housebound, bedbound and in wheelchairs.
A group for those interested in visiting or moving to good locations in the Caribbean or elsewhere.
This group (currently in archived status) has as it its foundation the book A Beginner’s Guide to Mold Avoidance (written by Lisa Petrison and Erik Johnson) and is run by Lisa Petrison. A wide variety of topics of interest to those pursuing this kind of mold avoidance are discussed in the group. It is presented by Lisa Petrison, who is the executive director of Paradigm Change.
A support group (currently in archived status) for people living in Europe and practicing mold avoidance as described in the book A Beginner’s Guide to Mold Avoidance.
A group offering emotional, physical and cognitive support to those who are moldies but are married or in a relationships with a non-Moldie, and who are pursuing the approach discussed in the book A Beginner’s Guide to Mold Avoidance.
Individuals pursuing mold avoidance share information on living or spending time RV’ing or tent camping. The focus is on the approach to mold avoidance discussed in the book A Beginner’s Guide to Mold Avoidance.
A group for individuals in Australia who are following the approach discussed in the book A Beginner’s Guide to Mold Avoidance.
A group of mold illness victims in New Zealand.
A group for those pursuing Erik Johnson style mold avoidance. The administrators are Simcha MacGregor, Bryan Rosner and Christa Upton.
An advanced group for those who are familiar with the problem that has been referred to as “Hell Toxin.”
This group focuses on issues of interest to mold avoidance pioneer Erik Johnson, including the role played by mold toxins in chronic fatigue syndrome (CFS), the ignoring by researchers of the initial history of CFS, and the prospective future of mold-related illness.
LARGE GENERAL GROUPS – Facebook
A support and educational group for those affected by toxic mold, focused on natural healing approaches. The owner of the group is Jennifer Cannon.
A group focused on discussing the Shoemaker protocol and other therapies for mold-related illness.
Discussion of a wide variety of therapies for toxic mold illness and related conditions.
A support and discussion group for those injured by toxic mold. The owner of the group is Dr. Mary Short-Ray.
A group focusing on recovery from illnesses associated with toxic mold exposures.
Additional GENERAL Groups – Facebook
Societal factors facing mold sufferers.
A group on recovering from chronic illness with a strong mold avoidance focus.
A group for sharing and discussing information about biotoxin illness.
A group discussing the dangers of Stachybotrys (also known as black mold).
Discussion of biotoxin illness, Lyme and mold.
Discussion of mold-related issues.
Support group for those affected by toxic mold.
A group with the goal of allowing patients to compare treatment experiences.
A group for people dealing with difficult-to-treat chronic illness issues.
A group on sharing inspiration, encouragement and emotional support for those struggling with biotoxin illness.
Helping individual mold sufferers to cope with their illness.
A group providing answers to mold-related questions.
A group focused on identifying and sharing information to combat the environmental disease of CIRS.
A mold group focused on mold awareness and education, in memory of suicide victim Jared Dussault.
A group providing up-to-date information on the effects of mold on human health.
Group to raise awareness of the dangers of moldy buildings.
A group for mold illness sufferers.
A support group for those dealing with mold-related illness.
Basic information for those afflicted with mold illness.
A group focused on healing from chronic mold-related illnesses.
Discussion from mold sufferers.
SPECIFIC TOPIC GROUPS – FACEBOOK
Discussion group with emphasis on problems faced by those affected by Hurricane Sandy.
Be bold, be bald, be a baldie moldie!
A group for sharing and discussing science-based articles about mold/biotoxin illness.
A group for Christians to encourage one another in the Holy Spirit.
A group exploring the psychospiritual aspects of biotoxin illness.
A group for parents of children with toxic mold or Lyme issues.
A group for individuals focused on using brain retraining techniques in order to attempt to reduce environmental sensitivities.
A group for parents or caregivers dealing with mold-related issues.
An online community to study the Word of God and to pray for and support one another during the recovery process.
A group for mothers who are determined to ensure that their children have a mold-free environment in which to live, learn and grow.
A group for those with pets affected by mold issues.
Housing-Oriented Groups – Facebook
A group for sharing science-based information and discussion regarding water-damaged buildings.
A group with the goal of setting up a non-profit foundation to provide housing for those with hyperreactivities to toxic mold and other substances.
A group about building tiny houses for those with MCS and mold sensitivity.
A discussion group related to safety, cleaning, remediation and maintenance of buildings.
A group designed to share information and resources on building housing that will not acquire mold growth.
A group for individuals and families with mold illness who are searching for safer housing as well as for those who are able to provide this type of housing.
A group that discusses details of trailer choice, caulking, flooring, insulation, windows, wall coverings, insulation and plumbing.
Discussion of living environments for those hyperreactive to toxic mold.
A group discussing housing appropriate for mold-reactive individuals.
Regional GroupS – Facebook
A group for people in Arizona who have been impacted by mold exposure.
A group of mold illness victims living in the Denver area.
A group for people from Canada dealing with environmental illness issues.
A group for Moldies living in the Los Angeles metropolitan area.
A group for people to share information about safe or moldy buildings, areas in Las Vegas, businesses, restaurants, shops, museums, movie theaters, housing, doctors, and local remediators.
A group of mold illness victims living in Washington, D.C., and surrounding areas.
Michigan residents share information about mold illness resources.
A group for those with mold-related illness from the Ohio area.
A group about mold illness for those from the Pittsburgh area.
Group for those with mold illness and environmental illness living in Southern California.
A group for those dealing with cleanup issues related to Hurricane Harvey.
A group for individuals living in New England and pursuing mold avoidance.
A group for people living with chemical, environmental or mold illness in the southeast U.S.
A group for Australian mold illness victims.
A group for toxic mold survivors around Tucson.
Additional FORUMS – Non-Facebook
A forum for those with chronic neuroimmune illness, including some mold avoidance discussions.
A section of the ME/CFS website devoted to sensitivities to toxic mold and other substances.
Online community of individuals suffering from environmental illness.
ARCHIVED YAHOO GROUPS
A Yahoo group on the topic of the importance of location in chronic neuroimmune disease, run by Pol Beith.
A Yahoo group for indoor air quality professionals.
A Yahoo group for those suffering from severe mold hyperreactivity.
A Yahoo group on the topic of unhealthy air quality.
Links on this page are in orange (no underlining).