M.E. Patient Resources

 

Roger King, author of the novel “Love and Fatigue in America.”

 

This page lists some basic resources that may be helpful for individuals suffering from myalgic encephalomyelitis (M.E.) to use to obtain information about the disease and connect with others.

Some of the larger M.E.-Related Patient Forums are listed on a separate page of this website.

 

M.E. HISTORY

These are some books and articles summarizing some of the history of M.E. in the U.S.

 

Back from the Edge (2013)

“CFS and the CDC” (2011)

Osler’s Web (1996)

Thirty Years of Disdain (2015)

Thirty Years of Disdain (Longer Version)

 

ADVOCACY ORGANIZATIONS

These are some advocacy organizations based in the U.S.

 

ME Action Network

ME Advocacy

 

BOOKS & ESSAYS

These are some books and essays about what it’s like to have M.E.

 

“A Sudden Illness” (2003)

Falling Through the World (2012)

Love and Fatigue in America (2012)

“Severe M.E. Patients Speak Out” (2015)

Sound of a Wild Snail Eating (2010)

 

FILMS

These are some films focusing on what it is like to have M.E.

 

“Forgotten Plague” (2015)

“I Remember M.E.” (2000)

“Living Hell” (1993)

“Unrest” (2017)

“Voices from the Shadows” (2011)

“What About M.E.?” (2017)

 

CLINICIAN EDUCATION

These are some articles appropriate to provide to physicians and other healthcare professionals.

 

Bested/Marshall Review Article (2015)

Leonard/Zinn Review Article (2015)

IOM Clinicians Report (2015)

NIH Research Report (2014)

Anesthesia Usage Guidelines

 

PHYSICIAN PRESENTATIONS

These are some videos of presentations by and interviews with some leading physicians treating M.E. patients.

 

Dr. Paul Cheney (2013)

Dr. Nancy Klimas (2016)

Dr. Jose Montoya (2011)

Dr. Daniel Peterson, Pt. 1 (2011)

Dr. Daniel Peterson, Pt. 2 (2011)

 

TREATMENT INFORMATION

These are some information sources discussing a variety of treatment options possibly appropriate for those with M.E.

 

Chronic Fatigue Syndrome: A Treatment Guide

Diagnosis and Treatment of CFS and ME

Dr. Sarah Myhill’s Website

Get Well From M.E.

Health Rising

Paradigm Change

Phoenix Rising

ProHealth

 

INFORMATIONAL WEBSITES

These are some websites providing information about M.E.

 

Malcolm Hooper & Margaret Williams Website

Leonard Jason Website

ME/CFS Alert

ME-pedia

Myalgic Encephalomyelitis Society of America

Nightingale Research Foundation

 

CARE GIVING

These are some books providing information for those caring for individuals with severe M.E.

 

Caring for the M.E. Patient

Severe M.E.

 

Information on this website is presented by Paradigm Change. Links are in orange (no underlining).