M.E. Patient Resources
Roger King, author of the novel “Love and Fatigue in America.”
This page lists some basic resources that may be helpful for individuals suffering from myalgic encephalomyelitis (M.E.) to use to obtain information about the disease and connect with others.
Some of the larger M.E.-Related Patient Forums are listed on a separate page of this website.
M.E. HISTORY
These are some books and articles summarizing some of the history of M.E. in the U.S.
Thirty Years of Disdain (2015)
Thirty Years of Disdain (Longer Version)
ADVOCACY ORGANIZATIONS
These are some advocacy organizations based in the U.S.
BOOKS & ESSAYS
These are some books and essays about what it’s like to have M.E.
Falling Through the World (2012)
Love and Fatigue in America (2012)
“Severe M.E. Patients Speak Out” (2015)
Sound of a Wild Snail Eating (2010)
FILMS
These are some films focusing on what it is like to have M.E.
“Voices from the Shadows” (2011)
CLINICIAN EDUCATION
These are some articles appropriate to provide to physicians and other healthcare professionals.
Bested/Marshall Review Article (2015)
Leonard/Zinn Review Article (2015)
PHYSICIAN PRESENTATIONS
These are some videos of presentations by and interviews with some leading physicians treating M.E. patients.
Dr. Daniel Peterson, Pt. 1 (2011)
Dr. Daniel Peterson, Pt. 2 (2011)
TREATMENT INFORMATION
These are some information sources discussing a variety of treatment options possibly appropriate for those with M.E.
Chronic Fatigue Syndrome: A Treatment Guide
Diagnosis and Treatment of CFS and ME
INFORMATIONAL WEBSITES
These are some websites providing information about M.E.
Malcolm Hooper & Margaret Williams Website
Myalgic Encephalomyelitis Society of America
Nightingale Research Foundation
CARE GIVING
These are some books providing information for those caring for individuals with severe M.E.
Information on this website is presented by Paradigm Change. Links are in orange (no underlining).