Viral Illness Survey Case Summaries: Severe Lung Issues Without High Fever

 

 

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May 11, 2020

By Lisa Petrison, Ph.D.

This page provides a summary of the case reports from some of the first individuals to respond to the Paradigm Change Coronavirus Covid-19 and Viral Illness Survey.

Individuals included on this page are those who reported that they had severe lung symptoms without a fever of 100F or more.

Patient summaries are arranged in chronological order by illness onset date. Patients with onset dates prior to December 1, 2019, are listed in the “Earlier Cases” section at the bottom of the page.

An overview of the initial summary results is provided on a separate Paradigm Change blog page.

 

Overview

Number of cases: 11

Average Severity Score: 51

Severity Score Range: 24-73

 

Recovery Status (21+ Days):

10 cases

40% – Totally Recovered

20% – Mostly Recovered

20% – A little better

10% – Not feeling better but the situation seems stable

10% – Acute viral-type symptoms basically resolved but chronic illness issues are worse

 

Illness Onset:

9% – November 2019

27% – December 2019

18% – February 2019

45% – March 2019

 

Chronic Illness History (ME/CFS/CIRS/Lyme/etc.):

37% – Severe

49% – Moderate

6% – Mild

9% – None

 

Severe Symptoms: 

Muscle aches, 64%; Tiredness, 64%; Sleepiness, 64%; Difficulty breathing, 63%; Lung pain, 55%; Weakness, 55%; Generally feel terrible, 55%; Shortness of breath, 46%; Lung pressure, 45%; Wet cough, 36%; Feverish feelings, 36%; Dry cough, 27%; Bronchitis, 27%; Headache, 27%; Diarrhea, 27%; Nausea, 27%; Chills, 27%; Runny nose, 27%; Pneumonia, 18%; Sore throat, 18%; Difficulties swallowing, 18%; Dehydration, 18%; Bone pain, 18%; Joint pain, 18%; Pain when moving body parts, 18%; Sore voice, 9%; Vomiting, 0%; Loss of appetite, 0%; Loss of smell, 0%; Loss of taste, 0%; Abdominal pain, 0%; Blue lips or face, 0%; Elevated temperature, 0%; Sneezing, 0%

 

Moderate or Severe Symptoms: 

Shortness of breath, 91%; Tiredness, 91%; Sleepiness, 91%; Generally feel terrible, 91%; Difficulty breathing, 82%; Lung pressure, 82%; Headache, 82%; Runny nose, 82%; Weakness, 82%; Lung pain, 73%; Muscle aches, 73%; Dry cough, 64%; Feverish feelings, 64%; Wet cough, 45%; Pneumonia, 45%; Bronchitis, 45%; Chills, 45%; Joint pain, 45%; Pain moving body parts, 45%; Abdominal pain, 36%; Bone pain, 36%;  Sore throat, 27%; Difficulties swallowing, 27%; Dehydration, 27%; Diarrhea, 27%; Nausea, 27%; Vomiting, 18%; Loss of appetite, 18%; Loss of smell, 18%; Elevated temperature, 18%; Sore voice, 9%; Loss of taste, 9%; Blue lips or face, 0%; Sneezing, 9%

 

Mild, Moderate or Severe Symptoms: 

Difficulty breathing, 100%; Lung pressure, 100%; Tiredness, 100%; Sleepiness, 100%; Shortness of breath, 91%; Lung pain, 91%; Headache, 91%; Weakness, 91%; Generally feel terrible, 91%; Dry cough, 82%; Feverish feelings, 82%; Runny noise, 82%; Sore throat, 73%; Nausea, 73%; Muscle aches, 73%; Dehydration, 64%; Joint pain, 64%; Wet cough, 55%; Bronchitis, 55%; Abdominal pain, 55%; Elevated temperature, 55%; Chills, 55%; Sneezing, 55%; Pneumonia, 45%; Sore voice, 45%; Diarrhea, 45%; Bone pain, 45%; Pain moving body parts, 45%; Loss of appetite, 36%; Loss of taste, 36%; Difficulties swallowing, 27%; Vomiting, 18%; Loss of smell, 18%; Blue lips or face, 0%

 

Laurie

Patient Number: 108

Current Condition: A little better

Severity Score: 70

Time Since Onset: 133 days

Onset Location: Southeast NH

Prior Locations:  Southern Maine

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 11/29/19

Lung Date: 4/10/20

Lung Symptom Lag: 101 days

Lung Severity: Severe problem

High Fever:  99-100F (usually low)

Bedridden During Illness:  Mostly bedridden.

Relapse: I got somewhat better and then had a substantial relapse

Duration:  Very severe – 2 days; Moderate – 30 days; Mild – 90 days

Initial Symptom: Unproductive dry cough

Very Severe Symptoms: Wet cough; Muscle aches; Bone pain; Joint pain; Weakness; Tiredness; Sleepiness

Severe Symptoms: Shortness of breath; Lung/chest pain; Lung/chest pressure; Dry cough; Difficulties swallowing; Nausea; Feverish feelings; Generally feeling terrible

Moderate Symptoms: Difficulty breathing; Headache; Vomiting; Abdominal pain; Chills; Runny/stuffy nose

Mild Symptoms: Bronchitis; Sore/painful throat; Dehydration; Diarrhea; Elevated temperature; Sneezing

Not An Issue: Pneumonia; Sore voice; Loss of appetite; Loss of smell; Loss of taste; Blue lips or face

Suspect Illness (compared to colds/flus):  Different symptoms, harder to get over.

Practitioner:  1) ER said it was anxiety. Urine was clean. 2) Primary agreed I should stop NSAID when I became aware that I might have the virus. After a month, when I told him pain and mobility were issues, he wanted me to carefully try to get back on NSAID. (He prescribed Skeaxin 4x a day and I kept having more pain on it.)  My primary is encouraging me to isolate and use guaifenesin, rest, hydration, and call him in a few days to see if I get pain relief from NSAID. Also to call if my O2 goes down to 88.

Decade Born: 1940’s

Gender: Female

Living: House

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely not

Chronic Conditions:  Asthma, Chronic/Post Lyme, IBS, MCAS, MCS, Toxic Mold Illness. Also chronic bronchitis (mold exposure); obesity; breast cancer, two closed head injuries, low thyroid, skin cancer

Worst Neurological:  Moderately severe

ME/CFS:  Very severe – PEM, Cognitive, Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities; Severe – OI; Mild – Headaches

Most severe activity level: Totally bedridden and rarely could participate in conversations

Recent activity level: Rarely could go out but not bedridden

Mold Avoidance: Made big effort, improved somewhat

Mold Avoidance Skill: Extremely good

Medical treatment: Because of chest pain breathing in, O2 of 89 and severe back pain, they offered me Toradol and Valium. I refused. I was much worse the next day.

Critically Important: Stay out of moldy buildings;

Very Helpful: Elderberry, Garlic, Ginger, Onions, Raw honey, Cough drops, Vicks VapoRub, Rest, Spend time outdoors in good locations, Sun exposure

Somewhat Helpful: Vitamin C (2000 mg), Vitamin D, Vitamin E, Quercetin, Curcumin, Probiotics, Citrus fruits, MCT or coconut oil, Other antibiotic drugs (doxy), Antifungal drugs (fenbendazole), Antiviral drugs (Ivermectin), Acetaminophen, Aspirin, Bathe and change clothes frequently, Reduce stress, Stay warm

Additional Symptoms: My normal temp is 94-98(low thyroid). My temp has gone to 98.9 and i felt feverish. O2 is normally 99 it gradually got lower over 4 months for past 2 weeks it is 83-95 and I cant get it higher with breathing exercises. I have severe back pain…some may be from osteo arthritis but some is from lungs especially when i breathe in. This pain got worse when I stopped dicolfenec (nsaid) that controls arthritis. (I chose to do this when I read there were reports of adverse results when Covid-19 patients were on nsaids). I have been on nsaids highest dose for over 40 years beginning with Lyme. i am trying to get back on diclofenec half dose for 3 days. The pain and mobility issues without it are not safe for me

Relapse: It sometimes gets worse after shopping or more physical exertion than normal (such as walking dog 20 minutes instead of 10)

Other health issues: My low thyroid is not controlled right now. I believe I have had a fever when my temperature is 98.0 or above. I’m sweaty, weaker and a different achy than my arthritis.

Illness Course: Pain and mobility improving with diclofenac. Cough becomes productive for approx 6 hours after 3 guaifenesin 800mg during day. I feel a lot better for 6-12 hrs then cough comes back. I’m repeating this with a few rest days in between. It seems to be my best chance at getting better.

More comments: My feeling is that I have the virus and people I respect from chronic illness groups think I have it. The cough that started with remediation is exactly like cough I get from mold exposure, but I tested for mold during this whole 4 months and there were 4 kinds (2 toxic and 2 non toxic), but they were in very low numbers and the materials they were on were removed the first day. The cough never got bad enough for me to think I needed treatment, until I took large doses of guaifenesin and the cough became productive and I had a six hour episode of coughing up mucus. I also used steam in bathroom to help with this. That was the second week of April, I think. I was a lot better the next day but now am getting worse. I plan to use the guaifensin regularly to hopefully get all mucus out and get better.

 

Vivian

Patient Number: 102

Current Condition: I feel totally recovered

Severity Score: 71

Time Since Onset: 119 days

Onset Location: Graham, NC

Prior Locations:  Burlington/Haw River, NC

Chronic Illness History: Uncertain (but heart disease, lung disease, neurological issues, 80+ yo)

Onset Date: 12/12/19

Lung Date: 12/18/19

Lung Symptom Lag: 6 days

Lung Severity: Very severe problem

High Fever:  99-100 F (usually normal)

Bedridden During Illness:  Mostly bedridden

Relapse: I’m not sure

Duration:  Severe – 2 days; Moderate – 4 days; Mild – 1 day

Initial Symptom: Congestion, Cough, Malaise, Fever, Chills

Very Severe Symptoms: Wet cough; Generally feeling terrible

Severe Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Diarrhea; Nausea; Feverish feelings; Chills; Muscle aches; Weakness; Tiredness

Moderate Symptoms: Pneumonia; Bronchitis; Headache; Sore/painful throat; Dehydration; Vomiting; Loss of smell; Abdominal pain; Elevated temperature; Bone pain; Joint pain; Pain when moving body parts; Runny/stuffy nose; Sleepiness

Mild Symptoms: Dry cough; Sore voice; Loss of appetite; Loss of taste; Sneezing

Not An Issue: Difficulties swallowing; Blue lips or face;

Suspect Illness (compared to colds/flus):  Different symptoms

Practitioner:  Discussed via phone or Internet.

Decade Born: 1930’s

Gender: Female

Living: House

Previous Colds/Flus:  Several per year

Flu Shot: Definitely received

Blood Pressure:  Normal (taking medication)

Chronic Conditions:  Heart disease; Lung disease

Worst Neurological:  Very severe

Medical treatment: I have severe COPD and am a heart attack survivor (date of attack 3/7/18). I am prone to pneumonia so was advised to keep watch for labored breathing or oxygen saturation drops. Had a bout of bronchitis in November 2019 and was given azithromycin. My COPD is managed with oxygen supplementation, bronchodilators, and inhaled steroids. Heart disease is managed with blood pressure med., ACE inhibitor, and fluid intake mgmt. At 81 yo and with severe lung function, it was determined that while bypass surgery was warranted, the outcome was questionable so I was stented.

 

Karen

Patient Number: 15

Current Condition: I feel totally recovered

Severity Score: 24

Time Since Onset: 110 days

Onset Location: Mecan, WI

Prior Locations:  Middle Wisconsin

Chronic Illness History: Mild

Onset Date: 12/18/19

Lung Date: 12/20/19

Lung Symptom Lag: 2 days

Lung Severity: Severe

High Fever:  Mildly problematic elevated fever

Bedridden During Illness:  Not bedridden

Relapse: I’m not sure

Initial Symptom: Runny nose, Sneezing, Fatigue

Moderate Symptoms: Lung/chest pain; Lung/chest pressure; Dry cough; Headache; Runny/stuffy nose; Sneezing; Tiredness; Sleepiness; Generally feeling terrible

Mild Symptoms: Difficulty breathing; Wet cough; Sore/painful throat; Elevated temperature; Feverish feelings; Weakness

Not An Issue: Shortness of breath; Pneumonia; Bronchitis; Difficulties swallowing; Sore voice; Dehydration; Diarrhea; Vomiting; Nausea; Loss of appetite; Loss of smell; Loss of taste; Abdominal pain; Blue lips or face; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts;

Practitioner:  Not seen (illness not severe enough)

Decade Born: 1950’s

Gender: Female

Living: House

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely received

Blood Pressure:  Normal (not taking medication)

Chronic Conditions:  ADD/ADHD, Autoimmune, Food sensitivities, Celiac

Worst Neurological:  Not experienced

ME/CFS:  Moderate – Headaches, Sensitivities; Mild – Cognitive; Muscle/Joint Pain, Unrefreshing sleep: Not a Problem – PEM, OI

 

Sally

Patient Number: 97

Current Condition: I feel totally recovered

Severity Score: 24

Time Since Onset: 112 days

Onset Location: Dillsburg, PA

Chronic Illness History: Mild (plus diabetes)

Mold Avoidance: Yes

Onset Date: 12/28/19

Lung Date: 1/8/20

Lung Symptom Lag: 11 days

Lung Severity: Severe

Duration:  Life-threatening -14 days; Mild – 28 days

High Fever:  Under 99F

Bedridden During Illness:  Not really bedridden but slept a great deal

Relapse: I have experienced improvements without substantial relapse

Initial Symptom: Dry cough; Breathing mildly difficult

Severe Symptoms:  Difficulty breathing; Shortness of breath; Pneumonia

Moderate Symptoms: Lung/chest pain; Lung/chest pressure; Dry cough; Bronchitis; Generally feeling terrible

Mild Symptoms: Sore/painful throat; Nausea; Loss of appetite; Tiredness; Sleepiness

Not An Issue: Wet cough; Headache; Difficulties swallowing; Sore voice; Dehydration; Diarrhea; Vomiting; Loss of smell; Loss of taste; Abdominal pain; Blue lips or face; Elevated temperature; Feverish feelings; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Runny/stuffy nose; Sneezing; Weakness

Suspect Illness (compared to colds/flus):  More severe, harder to get over

Practitioner:  Saw practitioner. Diagnosed with severe respiratory condition/pneumonia.

Decade Born: 1940’s

Gender: Female

Living: House

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely received

Blood Pressure:  Normal (taking medication to lower)

Chronic Conditions:  Diabetes

Worst Neurological:  I have not experienced these kinds of symptoms

ME/CFS:  Moderate – Unrefreshing Sleep; Mild – PEM; Not A Problem – Cognitive, OI, Headaches; Muscle/Joint Pain; Sensitivities

Most severe activity level: I could go out a few times a week

Recent activity level: I could be active 10 hours a week

Mold Avoidance: Big effort, health improved somewhat

Mold Avoidance Skill: Not that great

Mold Exposure: Not that clear

HH Member #1:  1940; COPD, High BP;  Moderately severe acute illness with lung symptoms

Medical treatment: Used inhaler every 2 hours for 3-4 weeks

Very Helpful: Azithromycin; Other antibiotics

Somewhat Helpful: Prescription cough syrup; Acetaminophen; Ibuprofen; Rest

No Effect: Cough drops

Don’t know: Vitamin C; Vitamin D; Vitamin E; Berberines ; Bathe and change clothes frequently; Reduce stress

Additional Helpful Treatments: Used SN inhaled and a humidifier

Additional comments: I have had pneumonia 2-3 times and yet I never coughed and lost my breath. I did with this so many times it frightened me when it happened.

 

Angela

Patient Number: 49

Current Condition: I feel mostly recovered.

Severity Score: 73

Time Since Onset: 44 days

Onset Location: Anaheim, CA (Went to Disneyland on 2/14 and 2/17)

Prior Locations:  Palm Desert, Palm Springs, Desert Hot Springs, CA

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 2/19/20

Lung Date: 3/12/20

Lung Symptom Lag: 21 days

Lung Severity: Severe problem

High Fever:  Don’t know (Mildly Elevated Temperature)

Bedridden During Illness:  Not really bedridden but slept a great deal.

Relapse: Experienced improvements without substantial relapse

Duration:  Life-threatening – 2 days; Very severe – 4 days; Severe – 3 days; Moderate – 3 days; Mild – 7 days

Initial Symptom: Sore throat, Swollen Glands, Burning chest pain, Night sweats

Life-Threatening Symptoms: Bronchitis

Very Severe Symptoms: Difficulty breathing, Lung/chest pain, Pneumonia, Headaches; Sore/painful throat; Difficulties swallowing; Diarrhea; Generally feeling terrible

Severe Symptoms: Dehydration; Muscle aches; Runny/stuffy nose; Weakness; Tiredness; Sleepiness

Moderate Symptoms: Shortness of breath, Lung/chest pressure; Pneumonia, Loss of smell; Pain when moving body parts

Mild Symptoms: Dry cough; Sore voice; Nausea; Loss of taste; Abdominal pain; Feverish feelings; Joint pain; Elevated temperature

Not An Issue: Wet cough; Vomiting; Loss of appetite; Blue lips or face; Chills; Bone pain; Weakness

Additional Symptoms: Secondary bacterial infection.  Adrenal and mito crash. Achy, tired. Swollen glands which produced lots of sticky mucus after a couple of days. Night sweats. Stabbing lung pain. Awful ME/CFS symptoms – viral flare. Terrible kidney pain. Muscle tested and had bacterial infection in kidneys, other lung infections.

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over.

Practitioner:  Discussed via phone or Internet (Various results for muscle testing)

Decade Born: 1960’s

Gender: Female

Living: RV with plumbing

Previous Colds/Flus:  One every several years

Flu Shot: Definitely did not receive

Blood Pressure:  Normal (no medication)

Chronic Conditions:  ADD/ADHD; Asthma; Autoimmune; Chronic/Post Lyme; Fibromyalgia; Food sensitivities; Lung disease; ME/CFS; MCAS; MCS; POTS; Toxic Mold Illness; Frequent Bronchitis/Pneumonias

Worst Neurological:  Moderately severe

ME/CFS:  Very  Severe – Cognitive, Unrefreshing Sleep, Sensitivities; Severe – PEM, OI, Muscle/Joint Pain; Not A Problem – Headaches

Most severe activity level: Could be active for 20 hours a week

Recent activity level: Could be active for 20 hours a week

Mold Avoidance: Made big effort, health improved somewhat

Mold Avoidance Skill: Very good

Mold Exposure: Very clear

Critically Important: Vitamin A; Stay out of moldy buildings; Gargling (ACV, hydrogen peroxide, warm salt water)

Very Helpful: Electrolyte beverage; Garlic; Vicks VapoRub; Spend time outdoors in good locations; Stay warm; Sun exposure

Somewhat Helpful: Zinc (5-15 mg); Echinacea; Other essential oil (oregano oil on feet; On Guard oil in diffuser); MCT or coconut oil; Ginger; Onions; Reduce stress; Rest; Rinsing sinuses (X Clear)

No Effect: Probiotics

Harmful: Vitamin C; Elderberry

Don’t know: Selenium

Treatment Details: Sliced onion next to bed for opening since and reducing drainage and oregano eo on feet at bed very helpful. Gargling 4x day imperative. Awful sticky alien like mucus. Like nothing I’ve ever experienced!:( week three still dealing a bit with fungal infections and metals and parasites issues in lungs. Mast cells going crazy. Indirectly related I believe. Couldn’t take much so relied on energy healer who clear many layers of issues in lungs and other organs. Beliefs, emotions, old infections etc. including a staph infection in lungs from age 10. Only other thing not mentioned was eating pineapple and no cold foods or beverages. Adding orange peel to herbal tea to thin mucus

Details: Two days after Disneyland while driving back to desert I got a bad sore throat with swollen neck gland on one side. Burning lung pain on and off with these symptoms for 4 or 5 days afterwards. No other symptoms. Found it odd that upon walking in a LabCorp with mask on- nearly a month after original symptoms- I literally felt the virus envelope my body. I was very ill just a few hours later.

 

Margo

Patient Number: 105

Current Condition: I feel totally recovered

Severity Score: 32

Time Since Onset: 45 days

Onset Location: Reading, PA

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 2/26/20

Lung Date: 2/28/20

Lung Symptom Lag: 2 days

Lung Severity: Severe problem

High Fever:  Not a problem

Bedridden During Illness:  Totally bedridden

Relapse: I got somewhat better but then had a substantial relapse

Duration:  Severe – 10 days; Moderate – 5 days

Initial Symptom: Coughing; Post-nasal drip; Exhausted but jittery; Insomnia. Before that, I had lower back pain since 2/10 – very stubborn pain and not usual for me.

Severe Symptoms: Wet cough; Bronchitis; Muscle aches

Moderate Symptoms: Difficulty breathing; Shortness of breath; Headache; Feverish feelings; Chills; Runny/stuffy nose; Weakness; Tiredness; Sleepiness; Generally feeling terrible

Mild Symptoms: Lung/chest pain; Lung/chest pressure; Sneezing

Not An Issue: Dry cough; Pneumonia; Sore/painful throat; Difficulties with swallowing; Sore voice; Dehydration; Diarrhea; Vomiting; Nausea; Loss of appetite; Loss of smell; Loss of taste; Abdominal pain; Blue lips or face; Elevated temperature; Bone pain; Joint pain; Pain when moving body parts

Suspect Illness (compared to colds/flus):  Harder to get over

Practitioner:  Didn’t discuss (Avoid healthcare providers in general; I am a homeopath and treated myself)

Decade Born: 1950’s

Gender: Female

Living: Townhouse

Previous Colds/Flus:  One or two per year

Flu Shot: Definitely not

Blood Pressure:  Normal (not taking medication)

Chronic Conditions:  Food sensitivities; Toxic Mold Illness

Worst Neurological:  Moderate

ME/CFS:  Severe – PEM, Cognitive, Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities; Not A Problem – OI, Headaches

Most severe activity level: I could be active 20 hours a week

Recent activity level: I could be active 20 hours a week

Mold Avoidance: Made some effort, not able to be avoiding mold recently

Mold Avoidance Skill: Very good

Mold Exposure: Not very clear

HH Member #1:  1950’s; High blood pressure, cancer survivor, Carotid artery blockage in the last year; No illness

HH Member #2: 1990’s; Autism; No illness

Critically Important: Stay out of moldy buildings

Very Helpful: Cough drops; Ibuprofen; Reduce stress; Rest

Somewhat Helpful: Electrolyte beverage; Vicks VapoRub

Additional Helpful Treatments: Homeopathy – Bryonia was extremely helpful for painful cough, Antimonium Tartaricum was helpful for exposing mucus from the lungs; Belladonna was helpful for chills and heat.

Additional Comments: I just remember feeling like it was a very intense flu with substantial lung issues and a huge amount of mucus and wheezing. That was scary.

 

Victoria

Patient Number: 107

Current Condition: I don’t feel any better and can’t tell if it’s going to get worse or if it’s stable.

Severity Score: 46

Time Since Onset: 42 days

Onset Location: Eugene, OR

Prior Locations:  Las Vegas, NV

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 3/2/20

Lung Date: 3/2/20

Lung Symptom Lag: 0 days

Lung Severity: Severe problem

High Fever:  Not a problem

Bedridden During Illness:  Not really bedridden but slept a great deal

Relapse: I’m not sure

Initial Symptom: Sudden onset shortness of breath; Lung capacity significantly reduced; Thick sinuses; Fatigue.

Very Severe Symptoms: Tiredness

Severe Symptoms: Difficulty breathing; Shortness of breath; Feelings of lung/chest pressure; Sore voice; Dehydration; Muscle aches; Pain when moving body parts; Sleepiness; Generally feeling terrible

Moderate Symptoms: Headache; Difficulties swallowing; Feverish feelings; Joint pain; Runny/stuffy nose; Weakness

Mild Symptoms: Lung/chest pain; Nausea; Bone pain

Not An Issue: Dry cough; Wet cough; Pneumonia; Bronchitis; Sore/painful throat; Diarrhea; Vomiting; Loss of appetite; Loss of smell; Loss of taste; Abdominal pain; Blue lips/face; Elevated temperature; Chills; Sneezing

Additional Symptoms: Tightness in throat, like some had their hands around it. Feeling of thick upper sinus congestion but no mucus. Intense muscle/joint pain that comes and goes ever 2-3 days; Lungs feel like someone clamped a cage around them so that I can only expand them 2/3.

Suspect Illness (compared to colds/flus):  Different symptoms; more severe; harder to get over

Practitioner:  Saw a practitioner.  Said, “Could be a milder Covid.”  Chest X-ray clear.  Doctors doesn’t recommend CT scan because of the relatively high radiation hit. Said eventually he might send me for pulmonary function testing.

Decade Born: 1970’s

Gender: Female

Living: House

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely not

Blood Pressure:  Normal (no medication)

Chronic Conditions:  Autoimmune illness; Food sensitivities; IBS; Toxic Mold Illness

Worst Neurological:  Very severe

ME/CFS:  Very Severe: Cognitive, Sensitivities; Severe – Muscle/Joint Pain; Unrefreshing Sleep; Moderate – Headaches; Mild – PEM; Not A Problem – OI

Most severe activity level: Rarely could go out but not bedridden

Recent activity level: Could be active 30 hours a week

Mold Avoidance: Made some effort

Mold Avoidance Skill: Not that great

Mold Exposure: Not very clear

HH Member #1:  1950’s; Asthma; Moderate acute illness with lung symptoms

Very Helpful: Essential oils; Rest; Spend time outdoors in good locations;

Somewhat Helpful: Curcumin; Echinacea; Oregano oil; Colloidal silver; Probiotics; Electrolyte beverage; Garlic; Ginger; Hot peppers; Sun exposure; Take warm/hot baths; Gargling; Nebulizer; Rinsing sinuses

No Effect: Elderberry; Melatonin

Don’t know: Vitamin A; Vitamin C; Vitamin D; Zinc; Berberines; CBD

Additional Helpful Treatments: Essential oil inhaler (thieves and peppermint); Walking outdoors at a moderate to fast pace helps expand lungs; Castor oil/essential oil pack on chest/lungs; Essential oil diffusion; Young Living Deep Relief roll-on on chest at bedtime

Additional Comments: Onset was the day after returning from Las Vegas, 2/28-3/1. Planes were not being cleaned.

 

Salliann

Patient Number: 63

COVID Test – Negative

Current Condition: I feel mostly recovered

Severity Score: 56

Time Since Onset: 31 days

Onset Location: British Columbia, Canada

Prior Locations:  New Mexico (Taos/Ojo Caliente/Espanola); Arizona; Nevada; Idaho

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 3/3/20

Lung Date: 3/15/20

Lung Symptom Lag: 12 days

Lung Severity: Severe problem

High Fever:  99-100F (usually low)

Bedridden During Illness:  Almost totally bedridden

Relapse: Have experienced improvements without substantial relapse

Duration:  Severe – 14 days; Moderate – 7 days; Mild – 5 days

Initial Symptom: Runny nose

Very Severe Symptoms: Weakness; Tiredness; Sleepiness

Severe Symptoms: Difficulty breathing; Lung/chest pain; Lung/chest pressure; Feverish feelings; Chills; Muscle aches; Runny/stuffy nose; Generally feeling terrible

Moderate Symptoms: Shortness of breath; Dry cough; Pneumonia; Loss of appetite; Abdominal pain; Elevated temperature

Mild Symptoms: Headache; Sore/painful throat; Sore voice; Dehydration; Diarrhea; Nausea; Joint pain; Sneezing

Not An Issue: Difficulties with swallowing; Vomiting; Loss of smell; Loss of taste; Blue lips or face; Bone pain; Pain when moving body parts

Additional Symptoms: Worst vertigo I’ve ever had – couldn’t walk

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over.

Practitioner:  Saw practitioner. COVID, Influenza both negative.

Decade Born: 1970’s

Gender: Female

Living: Vehicle without plumbing

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely not

Blood Pressure:  Normal (not taking medication)

Chronic Conditions:  Food sensitivities; ME/CFS, MCS, Toxic mold illness, Psoriasis, Endometriosis

Worst Neurological:  Very severe

ME/CFS:  Very severe – PEM, Cognitive, OI, Headaches, Unrefreshing sleep, Sensitivities; Severe – Muscle/joint pain

Most severe activity level: Basically bedridden but could participate in conversations

Recent activity level: Could be active 50 hours per week

Mold Avoidance: Made big effort, health improved a great deal

Mold Avoidance Skill: Extremely good

Mold Exposure: Very good

Critically Important: Stay out of moldy buildings

Very Helpful: Vitamin C; Fresh Garlic; Medicinal mushrooms; Electrolyte beverages; Garlic; Cough drops; Rest; Spend time outdoors in good locations; Stay warm; Sun exposure

Somewhat Helpful: Zinc; Reduce stress

No Effect: Quercetin

Harmful: Ibuprofen

Additional Helpful Treatments: Osha tincture

Additional Comments: Worst vertigo

 

Ginger

Patient Number: 69

Current Condition: Almost a month later, still have extreme exhaustion, off and on sore throat, mild cough, always sleepy, painful chest jabs

Severity Score: 57

Time Since Onset: 32 days

Onset Location: Central Florida

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 3/8/20

Lung Date: 3/9/30

Lung Symptom Lag: 1 day

Lung Severity: Severe

High Fever:  99-100F (usually low)

Bedridden: Almost totally bedridden

Relapse: I got somewhat better but then had a substantial relapse

Duration:  Very severe – 7 days; Severe – 7 days; Moderate – 10 days

Initial Symptom: Extreme exhaustion; Lightened and dizzy feeling; Dry cough; Constant headache; Pressure in ears and sinuses; Brain fox; Mild fever (100.2); Eyes itchy and irritated; Air hunger; Mild sore throat; Swollen lymph gland (L neck); Nausea; Loss of taste

Very Severe Symptoms: Wet cough; Bronchitis; Weakness; Tiredness; Sleepiness; Generally feeling terrible

Severe Symptoms: Dry cough

Moderate Symptoms: Shortness of breath; Lung/chest pressure; Headache; Loss of taste; Feverish feelings; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Runny/stuffy nose;

Mild Symptoms: Difficulty breathing; Lung/chest pressure; Sore/painful throat; Sore voice; Dehydration; Nausea; Abdominal pain; Elevated temperature; Chills; Sneezing

Not An Issue Symptoms: Difficulties swallowing; Diarrhea; Vomiting; Loss of appetite; Loss of smell; Blue lips or face

Suspect Illness (compared to colds/flus):  Harder to get over

Practitioner:  Saw a practitioner. Tested for flu which was negative so said it must be upper respiratory infection, here, take these antibiotics (Z-pack). I did not take them.

Decade Born: 1960’s

Gender: Female

Living: House

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely not

Blood Pressure:  Normal (No medication)

Chronic Conditions:  Autoimmune, Chronic/Post Lyme, Fibromyalgia; Food sensitivities; IBS; ME/CFS; MCS; POTS; Toxic Mold Illness; Pneumonia; Shingles; COPD

Worst Neurological:  Moderately severe

ME/CFS:  Severe – PEM, Sensitivities; Moderate – Cognitive, Muscle/Joint Pain, Unrefreshing Sleep; Not A Problem- OI, Headaches

Most severe activity level: I was totally bedridden and rarely could participate in conversations.

Recent activity level: Could go out a few times a week.

Mold Avoidance: Made some effort, not able to be avoiding mold before illness

Mold Avoidance Skill: Extremely good

Mold Exposure: Not clear at all

HH Member #1:  1950’s; Diabetic; No acute illness

HH Member #2: 1940’s; Stomach issues; No acute illness

Relapse: I had two times thought I was almost back to my normal, only to be struck again. Each time was milder than the first.

Acquisition: I told doc of my pedicure with around 20 Asian workers in the room, who fly back and forth to Asia taking turns working with other family members. She said, But did you ask them if they had flown recently! Since I did not ask, she said I do not meet the criteria to be tested.

Comments: Although I was practically bedridden for almost 2 weeks, I did not think it was Covid 19 because it was milder than other flus I have had in the past. The exhaustion was severe..fever and body aches were about half as bad as other flu-like illnesses I’ve had. I thought it would be much worse because I have had pneumonia many times in my life starting as an infant (we lived in a moldy home then).

 

Mary Beth

Patient Number: 73

Current Condition: I feel basically recovered from the acute viral symptoms, but other chronic illness issues are worse than before I got the suspect illness.

Severity Score: 70

Time Since Onset: 24 days

Onset Location: Cottonwood, AZ

Prior Locations:  Sedona, AZ

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 3/10/20

Lung Date: 3/11/20

Lung Symptom Lag: 1 day

Lung Severity: Very severe problem

High Fever:  Lower than 99F (usually low)

Bedridden During Illness:  Not bedridden

Relapse: I have experienced improvements without substantial relapse

Duration:  Very severe illness – 5 days

Initial Symptom: Alternating hot and cold feelings throughout body; Extreme fatigue; Chest congestion; Trouble breathing; Sore throat; General feelings of just awfulness. The worst part was the shortness of breath, unlike anything I have ever experienced, which leads me to believe it was not a general cold or flu.

Very Severe Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Lung/chest pressure; Headache; Sore/painful throat; Feverish feelings; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Runny/stuffy nose; Weakness; Tiredness; Sleepiness

Moderate Symptoms: Dry cough

Not An Issue: Wet cough; Pneumonia; Bronchitis; Difficulties swallowing; Sore voice; Dehydration; Diarrhea; Vomiting; Nausea; Loss of appetite; Loss of smell; Loss of taste; Abdominal pain; Blue lips or face; Elevated temperature; Sneezing

Suspect Illness (compared to colds/flus):  More severe

Practitioner:  Not seen (Don’t have a primary care provider at all)

Decade Born: 1970’s

Gender: Female

Living: House; Vehicle (without plumbing)

Previous Colds/Flus:  One or two per year

Chronic Conditions:  Food sensitivities; MCS; Toxic Mold Illness

Worst Neurological:  Very severe

ME/CFS:  Very Severe – PEM, Headaches, Muscle/Joint Pain; Unrefreshing Sleep; Sensitivities; Severe – Cognitive, OI

Most severe activity level: Rarely could go out but not bedridden

Recent activity level: Rarely could go out but not bedridden

Mold Avoidance: Made big effort, Not able to be avoiding mold recently

Mold Avoidance Skill: Extremely good

Mold Exposure: Not clear at all

HH Member #1:  1940’s; ME/CFS, Mold poisoning, bedridden with Stage 4 Breast Cancer; Not sure if acute illness

Critically Important: Berberines; Elderberry; Other essential oils (eucalyptus in simmering pot)

Somewhat Helpful: Vitamin C (6000 mg)

No Effect: Vitamin D; Iodine; Zinc (Liquid Zinc from Vimergy 2 mg); Probiotics

Don’t know: Raw honey

Additional Helpful Treatments: Eucalyptus essential oil in pot of hot simmering water helped me to breathe.

Treatment Details: Lots of prayer and asked my mom to pray, also energy work with Rob Wergin’s call-in-series. He is from the Heal Documentary available on Netflix

Worsened Chronic Illness Symptoms: Extreme fatigue (much more than my normal), my normal abdominal pain (long-term SIBO) is worse, and general overall feelings of “blah.”

Additional Comments: I have been through a lot in my forty-three years, but this suspect illness terrified me because I had such trouble breathing. I did not seek medical help because I live alone and am poor in rural Arizona. My MCS is so severe, I have great difficulty in medical establishments, and I do not have a trusted healthcare provider to assist me or advocate for me.

 

Erica

Patient Number: 80

Current Condition: I feel somewhat recovered

Severity Score: 41

Time Since Onset: 10 days

Onset Location: Portland (OR)/Vancouver (WA)

Prior Locations: I had family visit from Bellevue, WA (Seattle) beginning 3/11. My husband was in Hebron/Cincinnati the week of 2/24 and Charlotte, NC the week of 2/10. He also has exposure at work to lots of people traveling to/from Germany.

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 3/13/20

Lung Date: 3/13/20

Lung Symptom Lag: 0 days

Lung Severity: Severe Problem

High Fever: 99-100 (Don’t know usual)

Bedridden During Illness: Not really bedridden but slept a great deal

Relapse: I have experienced improvements without substantial relapse

Duration: Life-threatening – 1 or 2 days; Very severe – 5; Severe- 2; Moderate – 2

Initial Symptom: Dry, shallow cough. Tight chest/restricted breathing. Nausea/dizziness.Tired. Headaches. Feeling super full after eating a small or normal amount to the point where I thought I’d throw up (but didn’t) on multiple occasions.

Very Severe Symptoms: Dry cough

Severe Symptoms: Difficulty breathing; Lung/chest pain; Lung/chest pressure; Headache; Diarrhea; Feelings of Nausea; Sleepiness

Moderate Symptoms: Shortness of breath; Wet cough; Loss of Appetite; Abdominal pain; Weakness; Tiredness; Generally feeling terrible

Mild Symptoms: Dehydration; Loss of taste

Not An Issue: Pneumonia; Bronchitis; Sore/painful throat; Difficulties swallowing; Difficulties talking (sore voice); Vomiting; Loss of sense of smell; Blue lips or face; Elevated temperature; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Runny/stuffy nose; Sneezing

Additional Symptoms: Really hot feet at night to the point of sweating profusely through the soles of my feet. Extra sensitivity to high PM 2.5 counts, which have been a major issue here lately at night, especially.

Suspect Illness (compared to colds/flus): Different symptoms; More severe; Harder to get over

Practitioner: Not seen. (Concerned about being quarantined; Concerned about infecting others; Doubt practitioner would be able to help.)

Decade Born: 1980’s

Gender: Female

Living: Apartment

Previous Colds/Flus: Rarely or Never

Blood Pressure: Normal (no medications)

Chronic Conditions: Food sensitivities; Parkinson’s; Toxic Mold Illness; Hypothyroidism

ME/CFS: Very Severe – Muscle/Joint Pain, Sensitivities; Severe – Cognitive, Unrefreshing Sleep; Moderate – PEM, Headaches; Not a Problem – OI

Most severe activity level: Rarely could go out but not bedridden

Recent activity level: 40 hours a week

Mold Avoidance: Big effort, improved a great deal

Mold Avoidance Skill: Extremely good

Mold Exposure: Somewhat clear

HH Member #1: 1970’s; Hypertension; Moderately severe acute illness with lung symptoms

HH Member #2: 2010’s; None; Mild acute illness with lung symptoms

HH Member #3: 2010’s; None; Some sort of unknown acute lung/breathing issue

Critically Important: Rest

Very Helpful: Vitamin C (liposomal 1000 mg);

Somewhat Helpful: Melatonin (3 mg at night); Garlic; Onions; Raw honey; Antiviral drugs (Byron White formula for EBV/Herpes); Bathe and change clothes frequently; Reduce stress; Spend time outdoors in good locations; Stay out of moldy buildings; Sun exposure

No Effect: Quercetin; Cough drops; Stay warm

Harmful: Alcohol

Don’t know: Vitamin A; Vitamin D; Zinc (zinc lozenge and zinc drops In water); Elderberry; Probiotics;

Other Very Helpful Treatments: Forsythia suspensa fruit tincture; Lonicera japonica tincture; Scutellaria balcalenis tincture; Organic green tea with manuka honey; High quality air purifier; Liposomal glutathione

Additional Comments: Forgot to mention that I have a rash, as of the start of this illness…severe itching above my armpits. Unfortunately, this coincides with a move from a moldy apartment to a good one, so I have no idea if it’s illness-related, mold detox related, different water-related (chloramine treated water now instead of chlorine, which I had for years), or maybe something like the Vitamin C. I had big oxalate issues in the past, so it could be that. I’ve had rashes in the past but nothing quite like this. I went through this illness in a mold-free apartment, though we were still in the midst of moving out of a moldy apartment and are wrapping up with that this week. I really wish I could have been in better air…it’s hard to know what lingering issues are related to a virus vs air quality. When the PM 2.5 counts nears 50, I start to feel it (not related to the illness). Last night, I checked it when I was particularly struggling, and the PM 2.5 count was 148. So, perhaps I am recovered from the virus but can’t tell because I’m held back by the air quality.

 

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