Viral Illness Survey Summary – All Respondents

 

 

What symptoms did you experience during the first two days of the suspect illness? 

(Most common responses)

Sore throat, fatigue, headache, fever, cough, body aches

 

All in all, how problematic have lung symptoms (related to coughing, breathing or chest pain) been for you during the Suspect Illness?

7% – Very severe problem

15% – Severe

31% – Moderate

16% – Mild

16% – Very mild

14% – Not a problem

 

Compared to what things were like when the Suspect Illness was at its worst, how are you doing now?

26% – I feel totally recovered

26% – I feel mostly recovered

8% – I feel somewhat recovered

15% – I feel a little better but not recovered

6% – I don’t feel any better but the situation feels like it is stable

3% – I don’t feel any better and the situation feels like it is getting worse

7% – I feel basically recovered from the acute viral symptoms, but other chronic illness issues are worse than before I got the suspect illness.

7% – Other

 

Please describe  the chronic illness issues that are worse?

(Asked only of those who said they were basically recovered but chronic issues were not back to baseline)

Fatigue, pain, asthma, depression, cough, abdominal pain, allergies, headaches, arthritis

 

Were you bedridden for a day or more as a result of the Suspect Illness?

11% – Totally bedridden

19% – Almost totally bedridden

17% – Mostly bedridden

30% – Not really bedridden but slept a great deal

21% – Not bedridden

2% – I already was mostly or fully bedridden before getting the Suspect Illness

 

To your knowledge, what was the highest body temperature that you experienced during the Suspect Illness?

1% – Higher than 104 F

3% – Between 103 and 104 F

12% – Between 102 and 103 F

13% – Between 101 and 102 F

15% – Between 100 and 101 F

17% – Between 99 and 100 F

17% – Lower than 99 F

23% – Don’t know

 

A normal body temperature is usually defined as being between 97.7 and 99.5 F. Prior to acquiring the suspect illness, what was your usual body temperature?

48% – Lower than the normal range

43% – Within the normal range

1% – Higher than the normal range

4% – Variable

6% – Don’t know

 

A relapse is when a person seems to be getting better from an illness but then gets substantially worse again. Which of these statements best describes your relapse experiences with the Suspect Illness?

6% – I have not yet experienced improvements

39% – I have experienced improvements without substantial relapse

31% – I got somewhat better but then had a substantial relapse

12% – I felt like I was basically recovered but then had a substantial relapse

10% – I’m not sure

 

Have you discussed the Suspect Illness with a physician or other licensed healthcare provider?

35% – Yes, I saw a practitioner

20% – Yes, I discussed with a practitioner via phone or Internet

37% – No

7% – Other

 

Did you receive a test for the coronavirus COVID-19?

84% – No, I have not received a test

8% – Yes, and the test results were negative

3% – Yes, and I am waiting for the results

7% – Other

 

Which of the following explains why you haven’t seen a healthcare practitioner for the Suspect Illness?

64% – Doubt that practitioner would be able to help

44% – Illness has not been severe enough

28% – Avoid healthcare practitioners in general

21% – Concerned about exposure to infections

18% – Concerned about exposure to mold or chemicals

13% – Too much trouble

13% – Don’t have primary care provider nearby

13% – Don’t have primary care provider at all

10% – Concerned about being quarantined

13% – Concerned about infecting others

10% – Concerned about out-of-pocket costs

10% – Feel too sick to make the effort

3% – Unable to arrange transportation to doctor or hospital

 

What is your gender?

88% – Female

12% – Male

 

What decade were you born?

1% – 1930’s

3% – 1940’s

20% – 1950’s

26% – 1960’s

30% – 1970’s

14% – 1980’s

6% – 1990’s

1% – 2000’s

 

During the few months prior to getting the suspect illness, where had you been living or staying?

62% – House

25% – Apartment or condo

7% – Townhouse

6% – Hotels

5% – Vehicle without plumbing

3% – Tent

2% – RV with plumbing

1% – Shed/Garage

1% – Porch/Balcony

 

In recent years, not counting the Suspect Illness, how often on average have you gotten cold or flus?

13% – Several per year

33% – One or two per year

16% – One every couple of years

9% – One every several years

28% – Rarely or never

1% – Not sure

 

Compared to colds or flus that you have had in the past, what has the Suspect Illness been like for you?

72% – Different symptoms

58% – Harder to get over

52% – More severe

 

Had you received a flu shot at any time during the year or so prior to getting the Suspect Illness?

76% – No, I definitely did not receive a flu shot

2% – No, I don’t think that I received a flu shot, but I am not certain

2% – Yes, I think I received a flu shot but am not certain

21% – Yes, I definitely received a flu shot during that time

 

A normal blood pressure reading is often defined as between 100/60 and 120/80. Keeping that in mind, was your typical blood pressure before acquiring the suspect illness high, normal or low?

1% – Very high

11% – High

58% – Normal

16% – Low

1% – Very low

13% – Don’t know

 

Prior to acquiring the Suspect Illness, were you taking medication to raise or lower your blood pressure?

81% – No, not taking medication

17% – Yes, taking medication to lower

1% – Don’t know

 

Which of the following health conditions have you had at any point in your life?

68% – Toxic Mold Illness or CIRS

49% – Gluten or food sensitivities

37% – ME or ME/CFS

34% – Autoimmune

31% – MCS

30% – Chronic/Post Lyme

30% – MCAS

26% – Fibromyalgia

25% – IBS

20% – ADD/ADHD

18% – Asthma

15% – POTS

10% – Psychiatric

8% – IBD

3% – ASD

4% – Diabetes

4% – Lung disease

2% – Heart disease

1% – Parkinson’s

13% – None of the above

 

Please list any other illness conditions you have experienced.

(Most common responses)

Cancer

Thyroid issues

Adrenal insufficiency

Immune problems

Allergy

Arthritis

Insomnia

Endometriosis

Anxiety

Anemia

Bronchitis

 

Which of these psychiatric conditions have you experienced?

(Percentages are of all survey respondents)

8% – Major depressive disorder

7% – Anxiety disorder

4% – PTSD

3% – Obsessive-compulsive disorder

1% – Bipolar disorder

 

Now, please think back to any neurological problems you may have experienced during your life. These may have included memory problems, other kinds of cognitive impairments, psychiatric issues, seizures, convulsions, paralysis or any other kind of neurological problem. At their worst, how severe were these neurological problems?

15% – Very severe

25% – Moderately severe

22% – Moderate

12% – Mild

21% – I have not experienced those kinds of symptoms

5% – I’m not sure

 

Please think back to the six months when you were most sick with any kind of chronic illness issues. How much of a problem were the following symptoms for you at that time?

(% stating that the problems were at least moderate)

76% – Unrefreshing sleep

73% – Cognitive issues (difficulties thinking or remembering)

70% – Sensitivities to mold, chemicals, EMF’s or foods

67% – Feeling worse after activity or exercise

63% – Muscle or joint pain

49% – Headaches

42% – Difficulties with sitting or standing (due to POTS, OI or low blood pressure)

 

Please think back to the time in your life when you were most affected by any kind of neurological or other chronic illness issues. During that time, how much activity did your health regularly allow?

23% – Basically or fully bedridden

44% – Housebound or bedridden

70% – Could be active less than 20 hours per week.

78% – Could be active less than 40 hours per week

 

Please think back to the six months just prior to getting the Suspect Illness. During that time, how much activity did your health regularly allow?

0% – Basically or fully bedridden

7% – Housebound or bedridden

26% – Could be active less than 20 hours per week

53% – Could be active less than 40 hours per week

 

Have you made any effort to avoid environmental mold toxins?

66% – Made a big effort

20% – Made some effort

10% – Have not pursued that

5% – Not sure

 

Please think back to how you were feeling during the several months before getting sick with the Suspect Illness. All in all, had your health improved since you started avoiding mold?

(Asked of those who said they had made an effort to avoid mold.)

43% – It had improved a great deal

31% – It had improved somewhat

11% – It had stayed about the same

1% – It had gotten worse

8% – Not sure

6% – I was  not able to be avoiding mold then

 

How good are you at immediately sensing or guessing whether you are currently being exposed to environmental mold toxins that will turn out to be a problem for you?

(Asked of those who said they had made an effort to avoid mold.)

30% – Extremely good

28% – Very good

25% – Fairly good

10% – Not that great

6% – I’m not able to do that at all

1% – Not sure

 

During the Suspect Illness, how clear have you been of mold toxins that typically have a negative effect on you? 

(Asked of those who said they had made an effort to avoid mold.)

30% – Very clear

37% – Mostly clear

11% – Somewhat clear

8% – Not very clear

9% – Not clear at all

7% – Not sure

 

Are there any other household members to discuss?

60% Yes

 

Of individuals with other household members discussed, this was the breakdown in terms of whether they had been sick with a recent acute viral-type illness with lung symptoms.

4% – Yes, with a very severe illness

26% – Yes, with a moderately severe illness

21% – Yes, with a moderate illness

13% – Yes, with a mild illness

13% – No, there was an illness but without lung issues.

18% – No, there was no illness.

5% – I’m not sure