Should You Eat Potatoes?
By Lisa Petrison Throughout the many years of my active ME/CFS, I mostly paid attention to what I ate in order to try to avoid the…
The Depression Response
By Erik Johnson and Lisa Petrison From Lisa: It’s long been observed that the illness that the U.S. government historically has chosen to call Chronic Fatigue…
IOM Statement from Anne Keith
Here is the statement presented to the IOM committee on “ME/CFS” on January 27, 2014, by advocate Anne Keith. Many thanks to Anne for making the…
A Mold Avoidance Retreat at Mercey Hot Springs
By Lisa Petrison I lived (in my RV) and worked at Mercey Hot Springs for nearly a year (2012-2013) because I liked it there so much.…
IOM Statement from Dr. Maryann Spurgin, Myalgic Encephalomyelitis Society of America
Following is the comment written by Dr. Maryann Spurgin of the Myalgic Encephalomyelitis Society of America for the Institute of Medicine meeting on January 27, 2014.…
IOM Statement from Charlotte von Salis, J.D.
Following is the comment written and presented by Charlotte von Salis, J.D., at the Institute of Medicine meeting on January 27, 2014. * Dear Panelists: You’ve…
Paradigm Change Bookshelf
This page lists books published by Paradigm Change. To learn about books on mold-related illness recommended but not published by Paradigm Change, please go to the Mold Illness…
Response from HHS: We’re Doing Everything Right, So You Have No Reason To Complain
By Lisa Petrison On December 14, 2013, I sent a letter to U.S. Health and Human Services Secretary Kathleen Sebelius, bringing to her attention problems associated…
New Letter Requesting Cancellation of HHS-IOM Contract and Signed by 197 Professionals and Advocates Sent to Secretary Sebelius
A new letter signed by 197 professionals and advocates working on behalf of individuals with Myalgic Encephalomyelitis (M.E.) has been sent to Secretary Kathleen Sebelius and…
Request to Secretary Sebelius: Please Replace Dr. Nancy Lee with a More Suitable CFSAC Designated Federal Officer
By Lisa Petrison Summary: This blog includes the text of a letter to HHS Secretary Kathleen Sebelius, asking that Dr. Nancy Lee be replaced with another…
Overwhelming, Growing Support of ME Experts by Advocates in Opposition to IOM Contract: Advocates’ Open Letter Re-Sent With Additional Signatures
As was the case with the experts’ open letter to Secretary Sebelius — first published on September 23, 2013, and then updated on October 25, 2013…
66 ME/CFS Advocates Send Letter to Secretary Sebelius in Support of Their Experts
Today, 66 ME/CFS advocates sent a letter to Department of Health and Human Services Secretary Kathleen Sebelius, joining 50 ME/CFS experts in calling for the…
How Do You Win A Rigged Game?
By Erik Johnson and Lisa Petrison Starting in the fall of 1984, an epidemic of a very weird illness emerged in the Lake Tahoe area of…
An ME/CFS Petition Worth Signing
By Erik Johnson and Lisa Petrison About two weeks ago, 35 doctors and researchers specializing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) sent a letter to Kathleen…
Flooding & Water Events
Almost all modern homes contain a great deal of cellulose (such as drywall, insulation, wallpaper, furniture and carpeting) that can become dangerously moldy very quickly when…
Mold Illness Practitioners
Following is a list of practitioners who have experience in treating toxic mold illness and who have received positive reports from patients. Please send comments about practitioners on…
Studies Report Link Between Aflatoxin and AIDS
Aflatoxin in foods appears to be a major driver in the AIDS epidemic in Africa, as a result of immune system damage from the poisons making…
A Time of Crisis
By Erik Johnson and Lisa Petrison From Lisa: About 150 years ago, the theory and the practice of medicine went through a dramatic change. Although scattered…