Viral Illness Survey Case Summaries: Severe Lung Issues With High Fever

 

 

Go To Overview Page

 

May 11, 2020

By Lisa Petrison, Ph.D.

This page provides a summary of the case reports from some of the first individuals to respond to the Paradigm Change Coronavirus Covid-19 and Viral Illness Poll.

Individuals included on this page are those who reported that they had a fever of 100F or more as well as severe lung symptoms.

Patient summaries are arranged in chronological order by illness onset date.

discussion of the initial survey results is provided on a separate Paradigm Change blog page.

 

Overview

Number of cases: 18

Average Severity Score: 67

Severity Score Range: 30-103

 

21-Day Recovery Status:

17 cases

6% – Totally Recovered

47% – Mostly Recovered

12% – Somewhat Recovered

24% – A little better

6% – Not feeling better but the situation seems stable

6% – No response

 

Illness Onset:

6% – May 2019

6% – October 2019

22% – December 2019

33% – January 2019

17% – February 2019

17% – March 2019

 

Chronic Illness History (ME/CFS/CIRS/Lyme/etc.):

56% – Severe

17% – Moderate

11% – Mild

11% – None

6% – No Response

 

Severe Symptoms:

Generally feel terrible, 83%; Tiredness, 78%; Weakness, 72%; Muscle aches, 61%; Difficulty breathing, 56%; Lung pressure, 56%; Wet cough, 56%; Shortness of breath, 50%; Lung pain, 50%; Sleepiness, 44%; Bronchitis, 44%; Sore throat, 39%; Dry cough, 39%; Feverish feelings, 39%; Joint pain, 39%; Pain when moving body parts, 39%; Headache, 33%; Dehydration, 33%; Nausea, 33%; Abdominal pain, 33%; Bone pain, 33%; Pneumonia, 28%; Difficulties swallowing, 28%; Sore voice, 28%; Chills, 28%; Elevated temperature, 22%; Runny noise, 22%; Loss of appetite, 17%; Diarrhea, 11%; Loss of smell, 11%; Loss of taste, 11%; Vomiting, 6%; Sneezing, 6%; Blue lips or face, 0%

 

Moderate or Severe Symptoms: 

Tiredness, 100%; Shortness of breath, 94%; Elevated temperature, 94%; Feverish feelings, 94%; Generally feel terrible, 94%; Difficulty breathing, 89%; Lung pain, 89%; Chills, 89%; Muscle aches, 83%; Weakness, 83%; Lung pressure, 78%; Sore throat, 78%; Sleepiness, 78%; Dry cough, 72%; Loss of appetite, 72%; Bone pain, 72%; Joint pain, 72%; Wet cough, 67%; Pain when moving body parts, 67%; Headache, 61%; Dehydration, 61%; Bronchitis, 56%; Difficulties swallowing, 56%; Abdominal pain, 56%; Nausea, 50%; Runny noise, 50%; Pneumonia, 44%; Sore voice, 39%; Loss of smell, 39%; Diarrhea, 33%; Loss of taste, 33%; Sneezing, 22%; Vomiting, 11%; Blue lips or face, 6%

 

Mild, Moderate or Severe Symptoms: 

Shortness of breath, 100%; Sore throat, 100%; Elevated temperature, 100%; Feverish feelings, 100%; Weakness, 100%; Tiredness, 100%; Generally feeling terrible, 100%; Difficulty breathing, 94%; Lung pain, 94%; Headache, 94%; Loss of appetite, 94%; Chills, 94%; Lung pressure, 89%; Dry cough, 89%; Muscle aches, 89%; Pain moving body parts, 89%; Runny noise, 89%; Difficulties swallowing, 83%; Nausea, 83%; Joint pain, 83%; Sleepiness, 83%; Wet cough, 78%; Bone pain, 78%; Dehydration, 72%; Bronchitis, 67%; Sore voice, 67%; Abdominal pain, 67%; Pneumonia, 61%; Diarrhea, 61%; Loss of smell, 57%; Sneezing, 56%; Loss of taste, 50%; Vomiting, 33%; Blue lips or face, 17%;

 

Jessica

Patient Number: 1

Current Condition: I feel somewhat recovered

Severity Score: 99

Time Since Onset: 310 days

Onset Location: Anaheim, CA

Prior Locations:  Phoenix, AZ; Disneyland (Anaheim, CA)

Chronic Illness History: Moderate

Mold Avoidance: Yes

Onset Date: 5/11/19

Lung Date: 5/11/19

Lung Symptom Lag: 0 days

Lung Severity: Very severe problem

High Fever:  101-102F (usually variable)

Bedridden During Illness:  Almost totally bedridden

Relapse: I got somewhat better but then had a substantial relapse.

Duration:  Life-threatening: 4-5 days; Very severe: 90 days; Severe: 30 days; Moderate: 45-60 days; Mild: 180 days

Initial Symptom: Tight burning chest; Cough; Low-grade Fever; Sore throat; Sinus pain.

Life-Threatening Symptoms: Wet cough; Pneumonia; Bronchitis; Generally feeling terrible

Very Severe Symptoms: Shortness of breath; Lung/chest pain; Lung/chest pressure; Headache; Sore voice; Dehydration; Loss of smell; Loss of taste; Abdominal pain; Muscle aches; Weakness; Tiredness

Severe Symptoms: Difficulty swallowing; Feverish feelings; Chills

Moderate Symptoms: Difficulty breathing; Dry cough; Sore/painful throat; Diarrhea; Nausea; Loss of appetite; Elevated temperature; Pain when moving body parts; Runny/stuffy nose; Sleepiness

Mild Symptoms: Bone pain; Joint pain

Not An Issue: Vomiting; Blue lips or face; Sneezing

Additional Symptoms: I have developed heart issues from this infection. It began with tachycardia walking or exerting myself at all. That has gone away. But now I frequently have heart palpitations when overexerting myself and high blood pressure. Also developed exercise intolerance and mitochondrial issues, which I never had before even with mold! I am able to hike and exercise again slowly, every day gets better but it’s been a long road. Have never been hit so hard in my life.

Suspect Illness (compared to colds/flus):  Harder to get over

Practitioner:  Saw a practitioner. Did not get a test since this happened way before the epidemic. Hope to get an antibody test. My doctor thinks I had this.

Decade Born: 1970’s

Gender: Female

Living: Apartment, New Hotels

Flu Shot: Definitely not

Blood Pressure:  Normal (no medicine)

Chronic Conditions:  Fibromyalgia; Toxic Mold Illness

Worst Neurological:  Moderate

ME/CFS:  Severe – Sensitivities; Moderate – Headaches, Unrefreshing Sleep; Mild – PEM, Cognitive, Muscle/Joint Pain; Not A Problem – OI

Most severe activity level:  Could be active 20 hours a week or more

Recent activity level: Could be active 40 hours a week or more

Mold Avoidance: Made a big effort, improved a great deal

Mold Avoidance Skill: Very good

Mold Exposure: Very clear

HH Member #1:  1970’s; Allergies; No acute illness

HH Member #2: 2000’s; CIRS, tic disorder, ADHD (past), Asthma (Past), Tourette’s (mostly recovered), seizure disorder (recovered), clotting disorder (recovered), PANS (mostly recovered); No acute illness

HH Member #3: 2000’s; CIRS; No acute illness

HH Member #4: 2010’s; Tics (acquired since infection); Acute moderately severe illness with lung symptoms

Very Helpful: Electrolyte beverage; Stay out of moldy buildings; Sun exposure

Somewhat Helpful: Vitamin C (2000 mg); Quercetin; Selenium; Garlic pills; Colloidal silver (nasal spray); Probiotics; Citrus fruits; Garlic; Onions; Azithromycin; Other antibiotic drugs; Acetaminophen; Rest; Spend time outdoors in good locations; Stay warm; Rinsing sinuses (NeilMed saline rinse followed by Xclear. Recently included silver spray which seems to help some)

No Effect: Vitamin E; Antifungal drugs; Bathe and change clothes frequently; Take warm/hot baths; Nebulizer (Itraconozole and Ampho B)

Harmful: Iodine; MCT or coconut oil

Don’t know: Vitamin A; Ibuprofen; Reduce stress; Gargling (salt water)

Other helpful treatments: NAC, glutathione (Low dose is all I can handle), L Lysine, vitamin C, L glutamine, glycine, electrolytes, tons of water, hot teas (decaf, herbal), sun, CoQ10, vitamins b1, b2, iron supplements and high iron foods for recovery (this infection depleted iron), L Theonine (but this virus affected my BP, so calming supps were helpful, may not being the case with everyone)

Antibiotics Used: Augmentin course (no help at all); Augmentin + azithromycin course (helped a tiny bit); Doxycycline course (helped some); Buhner mycoplasma herbs (no help at all- in fact I think these made me worse)

Antifungals Used: Nystatin orally (no help, I got worse); Itraconozole nebulized (no effects); Ampho B nebulized (no effects)

Relapse Comments: I feel like overall I’m doing much better than I was, but I do have days where I feel somewhat of a relapse. Not complete relapse but some recurrence of symptoms like low grade fever and burning mucous membranes (this was one of my “weird symptoms” from this- I feel it damaged my mucous membranes). I also can get that strange fatigue and exercise intolerance badly some days, when other days I’m ok. This is something I had never gotten even from mold- at least not like this.

Diagnosis: “Pneumonia” diagnosed July 2 on CT scan after coughing for 2 months; they saw ground glass opacities on CT scan, which is what they’re seeing in Corona patients now. Positive (IgG, though) for Mycoplasma pneumonia and Valley fever. We are unsure if these were past infections or not. My 3 year old also had this illness at the same time, though less severe and recovered faster, but has lingering issues like a throat clearing tic that comes and goes since this infection (she’s also 4-3-53). She also had a positive mycoplasma pneumonia IgG weeks after she stopped coughing. So timing could be off since we didn’t get a test until weeks/months after the illness started (started mid May, I was tested for MP end of July, after several rounds of antibiotics and C was tested in August, she had a milder case also). It’s also possible we had several different things going on. We don’t know for sure.

Treatment: I had several treatments for this, none of which helped: 1. Augmentin; 2. Augmentin plus azithromycin; 3. Doxycycline (helped some, but not enough); 4. Buhner herbs for mycoplasma; 5. Nystatin orally; 6. Nebulized itraconozole; 7. Nebulized ampho B. A recent nasal swab showed no fungus. I don’t think this is fungal related for me. A few things I’ve implemented these past few months that I think has helped, are electrolytes (which I think were depleted from infection), iron supplements, NAC, extra vitamin C, L Lysine, glycine, L-glutamine (I think my gut was also impacted from many antibiotics), more binders to catch pathogenic toxins (CSM, charcoal plus bentonite clay), treating sinuses with xclear and silver (which I’m nervous about and don’t recommend but it is helping those symptoms).

 

Stephanie

Patient Number: 3

Current Condition: I feel somewhat recovered.

Severity Score: 84

Time Since Onset: 133 days

Onset Location: Raleigh, NC

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Acquisition:  Live and work near airport doing grocery deliveries

Onset Date: 10/30/19

Lung Date:  10/31/19

Lung Symptom Lag: 1 day

Lung Severity: Severe problem

High Fever:  102-103 (usually normal range)

Bedridden During Illness:  I already was mostly or fully bedridden before getting the Suspect Illness

Relapse: I got somewhat better but then had a substantial relapse. (Kept feeling like cough would go away and come back.)

Duration:  Very severe – 14 days; Moderate – 1 month; Mild – 2 months

Initial Symptom: Scratchy sore throat; Diarrhea; Nausea; On second day, moved to lungs and caused bronchitis, dry cough, and inability to breathe.

Very Severe Symptoms: Dehydration; Joint pain; Runny/stuffy nose; Sneezing; Weakness; Tiredness; Generally feeling terrible

Severe Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Lung/chest pressure; Dry cough; Pneumonia; Bronchitis; Diarrhea; Feelings of nausea; Abdominal pain; Muscle aches; Pain when moving body parts

Moderate Symptoms: Severe/painful throat; Difficulties swallowing; Sore voice; Loss of appetite; Loss of smell; Elevated temperature; Feverish feelings; Chills; Bone pain

Mild Symptoms: Headache; Vomiting

Not An Issue: Wet cough; Loss of taste; Blue lips or face; Sleepiness

Additional Symptoms: Flared my Graves disease and was almost in a thyroid storm. Severely tachycardic Akastesia going into psychosis no sleep for days from viral illness flaring graves disease. Er tested graves numbers and it threw them out of range hyperthyroid. This happens to me with infections allergies viruses. Had to double meds and get saline IV’s to try to get body to calm down.

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over

Practitioner:  Saw a practitioner. (Said it wasn’t flu but didn’t know what it was.)

Decade Born: 1970’s

Gender: Female

Living: Apartment

Previous Colds/Flus:  One or two per year

Usual Blood Pressure:  Low (no medication)

Chronic Conditions:  Autoimmune; Chronic/Post Lyme; Fibromyalgia; Food sensitivities; IBD; IBS; ME/CFS; MCAS; MCS; Toxic mold illness; Graves disease; Diverticulitis; Reactive arthritis

Worst Neurological:  Moderately severe

ME/CFS:  Very Severe – Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities; Severe – PEM, Cognitive, OI; Moderate – Headaches

Most severe activity level: Basically bedridden but participate in conversations

Recent activity level: I could work or be active for 20 hours a week or more.

Mold Avoidance: Made a big effort, improved somewhat

Mold Avoidance Skill: Fairly good

Mold Exposure: Not clear at all

Medical treatment: Double up thyroid meds. Given 2 antibiotics, did not take. Given benadryl pepcid saline iv. Wanted to do steroids. I declined. Took Biocidin at home. It seemed to help some

Critically Important: Reduce stress; Rest; Stay out of moldy buildings; Take warm/hot baths

Very Helpful: Bathe and change clothes frequently

Somewhat Helpful: Berberines; Echinacea; Garlic essential oil; Oregano essential oil; Electrolyte beverages; Garlic; Acetaminophen; Cough drops; Stay warm; Sun exposure; Gargling; Rinsing sinuses

Don’t know: Other essential oils; Spend time outdoors in good locations

Other Very Helpful Treatments: Biocidin; Warm drinks

 

Danielle

Patient Number: 12

Current Condition: I feel mostly recovered

Severity Score: 103

Time Since Onset: 112 days

Onset Location: Chattanooga, TN

Prior Locations:  Nashville, TN

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 12/13/19

Lung Date: 12/18/19

Lung Symptom Lag: 5 days

Lung Severity: Severe problem

High Fever:  Higher than 104F (usually low)

Bedridden: Totally bedridden

Relapse: I got somewhat better but then had a substantial relapse

Duration:  Life-threatening – 3 days; Very severe – 2 days; Severe – 3 days; Moderate – 5 days; Mild – 14 days

Initial Symptom: During the first day, I just felt tired and like my brain was super foggy. It felt like my body was going to fight off something and be fine the next day. The second day was flu-like symptoms— a bad headache, fatigue, muscle pain and perhaps a slight fever.

Life Threatening: Headache; Elevated temperature; Weakness; Tiredness; Sleepiness; Generally feeling terrible

Very Severe Symptoms: Shortness of breath; Wet cough; Dehydration; Feverish feelings; Chills; Muscle aches; Bone pain; Pain when moving body parts; Runny/stuffy nose

Severe Symptoms: Sore/painful throat; Difficulties swallowing; Loss of appetite; Loss of smell; Loss of taste; Joint pain

Moderate Symptoms: Difficulty breathing; Lung/chest pain; Dry cough; Sore voice; Diarrhea; Abdominal pain;

Mild Symptoms: Lung/chest pressure; Pneumonia; Bronchitis; Vomiting; Nausea; Blue lips or face; Sneezing

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over

Practitioner:  Saw practitioner.

Decade Born: 1980’s

Gender: Female

Living: Apartment

Previous Colds/Flus:  Rarely or never

Flu Shot: Definitely not

Blood Pressure:  Usually low (not taking medication)

Chronic Conditions:  Autoimmune; Food sensitivities; ME/CFS; MCS; Toxic Mold Illness; Atypical Marfans; Chiari malformation with restricted CSF flow and severe scoliosis

Worst Neurological:  Very severe

ME/CFS:  Mild Problem – PEM, Cognitive, OI, Headaches, Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities

Most severe activity level: Could be active 10 hours a week

Recent activity level: Could be active 10 hours a week

Mold Avoidance: Made big effort, health improved a great deal

Mold Avoidance Skill: Fairly good

Mold Exposure: Mostly clear

Comments: I was adamant that I didn’t have the flu— that is was something else. I have had the flu once or twice and this was 10x worse. I think I caught it from my boyfriend’s nephew who has been sick for several weeks, so they assumed he was no longer contagious. The headache was absolutely unbearable and I get familial hemiplegic migraines… this was so much more painful. I got a negative point of care flu test at the walk-in doctor but at the ER an hour later I received a positive flu test. The ER doc would have down a spinal tap, but I have Chianti malformation and they didn’t know how to do the special kind of spinal tap I have to have. I would get a littler better one day then way worse the next. I was not the same for 2 months after that. It wasn’t until I started Dr Klinghardt recommended herbs for COVID that I finally felt a normal level of energy since the “flu”. I was certain I was going to die, it was so awful and bizarre.

Illness Course: Outside of the 2 week-long acute illness, a week or two ago I felt like I was having it all over again but extremely mild. Before anyone knew COVID caused loss or smell/taste, I was freaking out because I noticed I couldn’t smell or taste anything and I didn’t understand why. I couldn’t eat, either, but I’m ok with fasting so I didn’t get too concerned about loss of appetite. Then it ended with one day of flu-like symptoms but I didn’t even test my temperature. I just took more of the herbs Dr Klinghardt recommends and I was fine the next day.

 

Michelle

Patient Number: 17

Current Condition: I feel mostly recovered

Severity Score: 82

Time Since Onset: 85 days

Onset Location: San Francisco

Prior Locations: Berkeley, SF, Santa Cruz, San Jose Airport, Koloa Kauai

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 12/27/19

Lung Date: 1/5/20

Lung Symptom Lag: 9 days

Lung Severity: Very Severe Problem

High Fever: 102-103 (usually lower than normal)

Bedridden During Illness: Almost totally bedridden

Relapse: I got somewhat better and then had a substantial relapse. (I relapsed any time I exerted myself – cooking a meal, doing laundry, washing my hair.)

Duration: Life threatening – 2 days. Very severe – 6 days. Severe – 14 days. Moderate -5 days. Mild – 9 days.

Initial Symptom: Sore throat; Coughing; Headache

Very Severe Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Wet cough; Pneumonia; Difficulties swallowing; Sore voice; Tiredness; Generally feeling terrible

Severe Symptoms: Bronchitis; Feelings of nausea; Muscle aches; Bone pain; Pain when moving body parts; Weakness; Sleepiness

Moderate Symptoms: Lung/chest pressure; Headache; Sore/painful throat; Dehydration; Diarrhea; Loss of appetite; Loss of smell; Abdominal pain; Elevated temperature; Feverish feelings; Chills; Joint pain

Mild Symptoms: Loss of taste

Not An Issue: Dry cough; Vomiting; Blue lips/face; Runny/stuffy nose; Sneezing

Additional Symptoms: Swollen glands; Rib pain; Kidney pain; Vertigo

Suspect Illness (compared to colds/flus): Harder to get over

Practitioner: Diagnosed Mycoplasma pneumoniae.

Decade Born: 1960’s

Gender: Female

Living: House

Previous Colds/Flus: Several per year

Usual Blood Pressure: Low

Chronic Conditions: Autoimmune; Chronic/Post Lyme; Fibromyalgia; Food sensitivities; ME/CFS; MCAS; MCS; Shingles; Bladder infections; Candida; Lyme co-infections; Sjogren’s; Hashimoto’s

Worst Neurological: Moderately severe

ME/CFS: Very severe – PEM, Unrefreshing Sleep, Sensitivities; Severe – Cognitive, Headaches, Muscle/joint pain; Moderate – OI

Most severe activity level: I rarely could go out to shop or socialize but was not bedridden

Recent activity level: I could go out to shop or socialize a few times a wee

Mold Avoidance: Made some effort, Health improved somewhat

Mold Avoidance Skill: Extremely good

Mold Exposure: Mostly clear

HH Member #1: 1996; Undiagnosed chronic Lyme symptoms, Fatigue, Migratory joint and muscle pain; Illness but without significant lung issues.

Medical treatment: Offered antibiotics – didn’t take. After nearly 7 weeks, I was treated by Auricular medicine. In less than 3 days, my cough was gone.

Critically Important: Vitamin C (3-5 g liposomal); Cough drops; Bathe and change clothes frequently; Rest; Stay out of moldy buildings; Sun exposure; Take warm/hot baths; Rinsing sinuses (Xclear with saline, xylitol and briotech)

Very Helpful: Vitamin A; Vitamin D; Monolaurin; Probiotics; Spend time outdoors in good locations; Stay warm; Nebulizer (Briotech and distilled water 50/50);

Somewhat Helpful: Vitamin E; Iodine; Selenium; Zinc (30-45 mg chewable optimal zinc by Seeking Health); Elderberry; Oregano oil; Colloidal silver (Argentyn nano silver, 3 tsp daily first few days then 1 tsp daily); Medicinal mushrooms; Electrolyte beverage; Cough Syrup (non-prescription); Reduce stress; Gargling (sprayed Briotech HOCL on tonsils and gargled 5 minutes twice daily);

No Effect: Quercetin; Berberines; CBD; Melatonin; Ginger; Raw honey

Harmful: Alcohol; Citrus fruits

Other Very Helpful Treatments: Infrared sauna with cold plunge

Additional Comments: This illness was prolonged. After the initial 4 weeks it almost disappeared. However, with the smallest exertion, the virus flared and a low grade fever and widespread body pain and fatigue returned. This went on for a couple more weeks along with the violent debilitating cough that wracked my entire body. I had to see my chiropractor once a week to have my ribs adjusted.

 

Brenda

Patient Number: 99

Current Condition: I feel a little better but not recovered

Severity Score: 44

Time Since Onset: 105 days

Onset Location: Orlando, FL

Prior Locations:  Seattle, WA

Chronic Illness History: Mild

Mold Avoidance: Yes

Onset Date: 12/29/19

Lung Date: 1/1/20

Lung Symptom Lag: 3 days

Lung Severity: Very severe

High Fever:  100-101 (usually normal)

Bedridden During Illness:  Not bedridden

Relapse: I felt like I was basically recovered but then had a substantial relapse. (Chinese herbs helped, then I ran out and symptoms edged back up.)

Duration:  Severe – 10 days; Moderate – 20 days; Mild – 30 days

Initial Symptom: Runny nose; Drainage in throat; Extreme fatigue

Very Severe Symptoms: Lung/chest pressure

Severe Symptoms: Difficulty breathing; Dry cough; Wet cough

Moderate Symptoms: Shortness of breath; Lung/chest pain; Pneumonia; Bronchitis; Muscle aches; Runny/stuffy nose; Tiredness; Sleepiness; Generally feeling terrible

Mild Symptoms: Headache; Sore/painful throat; Difficulties swallowing; Diarrhea; Nausea; Abdominal pain; Fever; Feverish feelings; Chills; Joint pain; Pain when moving body parts; Sneezing; Weakness

Not An Issue: Sore voice; Dehydration; Vomiting; Loss of appetite; Loss of smell; Loss of taste; Blue lips or face; Bone pain

Additional Symptoms: Temperature regulation seems off; Word searching; Bronchials ache while lung X-ray clear; Holistic doc suspects fungal element

Suspect Illness (compared to colds/flus):  Harder to get over, more severe

Practitioner:  Saw practitioner. Said pneumonia and fungus (via muscle testing); Inflamed lungs

Decade Born: 1960’s

Gender: Female

Living: House

Previous Colds/Flus:  One or two per year

Flu Shot: Definitely did not receive

Blood Pressure:  Low (no medication)

Chronic Conditions:  Toxic mold illness; Suspected parasites

Worst Neurological:  Mild

ME/CFS:  Moderate – Unrefreshing sleep; Mild – PEM; Headaches; Muscle/Joint Pain; Sensitivities; Not A Problem – Cognitive, OI

Most severe activity level: Could be active 30 hours per week

Recent activity level: Could be active 60 hours per week

Mold Avoidance: Made a big effort, health improved somewhat

Mold Avoidance Skill: Fairly good

Mold Exposure: Mostly clear

HH Member #1:  1990’s; Lyme/Mold; Moderate acute illness with lung symptoms

Medical treatment: Multiple antibiotics and steroids.  Diflucan.

Critically Important: Stay out of moldy buildings

Somewhat Helpful: Vitamin C; Melatonin; Azithromycin;  Other antibiotic drugs (Moxifloxacin with oregano oil capsules; levofloxacin); Antifungal drugs (Diflucan); Acetaminophen; Non-prescription cough syrup; Bathe and change clothes frequently; Reduce stress; Rest; Spend time outdoors in good locations; Stay warm; Sun exposure; Take warm/hot baths; Nebulizer; Rinsing sinuses

No Effect: Citrus fruits

Don’t know: Vitamin A; Vitamin D; Zinc; Elderberry; Garlic pills; Oregano oil; Colloidal silver; Probiotics; MCT or coconut oil; Garlic; Antiviral drugs; Gargling

Additional Helpful Treatments: Binders

Additional Comments: Doctor believes she treated another with Covid in December and didn’t think I had it. Long history of reactive airway. This illness like no other I’ve had esp aching lungs. Chinese doc says bronchials inflamed, not lungs. Herbs seemed to help.

 

Annette

Patient Number: 18

Current Condition: I feel mostly recovered

Severity Score: 81

Time Since Onset: 96 days

Onset Location: San Diego, CA

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 12/30/2019

Lung Date: 1/1/20

Lung Symptom Lag: 2 days

Lung Severity: Severe problem

High Fever:  100-101F (usually low)

Bedridden: Totally bedridden

Relapse: About a month later, got sick all over again, mostly same symptoms

Duration:  Very severe – 5; Severe – 8; Moderate – 15; Mild – 20

Initial Symptom: Fever; Cough; Sweats; Fatigue

Very Severe Symptoms: Difficulty breathing; Wet cough; Sore voice; Tiredness

Severe Symptoms: Lung/chest pain; Lung/chest pressure; Pneumonia; Sore/painful throat; Nausea; Abdominal pain; Feverish feelings; Muscle aches; Pain when moving body parts; Weakness; Sleepiness; Generally feeling terrible

Moderate Symptoms: Shortness of breath; Dry cough; Headache; Difficulties swallowing; Dehydration; Diarrhea; Loss of appetite; Loss of taste; Elevated temperature; Chills; Bone pain; Joint pain; Sneezing

Mild Symptoms: Vomiting; Loss of smell; Runny/stuffy nose

Not An Issue Symptoms: Blue lips or face

Additional Symptoms: Watery eyes; sores on arms and face

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over.

Practitioner:  Yes, I saw a practitioner. Test did show virus. Advised rest, fluid, supplements

Decade Born: 1950’s

Gender: Female

Living: House

Previous Colds/Flus:  Several per year

Blood Pressure:  High (not taking medication)

Chronic Conditions:  Autoimmune; Fibromyalgia; IBS; ME/CFS; Toxic Mold Illness; Inflamed Ears; Lymph node issues; Optic nerve damage; Horrible menstrual cycle

Worst Neurological:  Moderately severe

ME/CFS:  Very severe – PEM, Cognitive, Headaches, Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities; Not a Problem – OI

Most severe activity level: Basically bedridden but could participate in conversations

Recent activity level: Could go out a few times a week

Mold Avoidance: Made big effort, health improved somewhat

Mold Avoidance Skill: Not that great

Mold Exposure: Very clear

 

Kimberly

Patient Number: 22

Current Condition: I feel mostly recovered

Severity Score: 61

Time Since Onset: 84 days

Onset Location: Northern California

Prior Locations: San Francisco; Incline Village

Chronic Illness History: Mild

Mold Avoidance: Yes

Onset Date: 1/5/20

Lung Date: 1/8/20

Lung Symptom Lag: 3 days

Lung Severity: Very severe problem

High Fever: 102-103F

Bedridden During Illness: Totally bedridden

Relapse: Improvements without relapse

Duration: Life threatening – a couple of days

Initial Symptom: Fever; Joint aches

Very Severe Symptoms: Wet cough; Bronchitis; Weakness

Severe Symptoms: Dry cough; Pneumonia; Joint pain; Pain when moving body parts; Tiredness; Sleepiness

Moderate Symptoms: Shortness of breath; Lung or chest pain; Lung or chest pressure; Loss of sense of smell; Loss of sense of taste; Abdominal pain; Elevated temperature; Feverish feelings; Chills; Muscle aches; Bone pain; Generally feeling terrible

Mild Symptoms: Difficulty breathing; Headache; Diarrhea; Feelings of nausea; Loss of appetite; Runny/stuffy nose; Sneezing

Not An Issue: Sore/painful throat; Difficulties with swallowing; Sore voice; Dehydration; Vomiting; Blue lips or face

Practitioner: Said my symptoms sounded like the virus to him. But this was a month after the fact

Decade Born: 1960’s

Gender: Female

Living: House/Apartment

Previous Colds/Flus: One every several years

Suspect Illness (compared to colds/flus): Different symptoms

Blood Pressure: Normal

Chronic Conditions: None of the above. Pneumonia after swine flu about 10 years ago.

Worst Neurological: Not experienced

ME/CFS: Moderate – PEM; Mild – Cognitive; None – OI, Headaches, Muscle/Joint, Unrefreshing Sleep, Sensitivities

Recent activity level: 30 hours per week

Mold Avoidance: Have made some effort, improved a great deal

Mold Avoidance Skill: Fairly good

Mold Exposure: Somewhat Clear

HH Member #1: 1970’s; No Chronic Health Conditions; Very severe acute illness with lung symptoms

HH Member #2: 2000’s; No Chronic Health Conditions; Moderately severe acute illness with lung symptoms

HH Member #3: 1990’s; No Chronic Health Conditions; Moderately severe acute illness with lung symptoms

Critically Important: Reduce stress; Rest; Spend time outdoors in good locations; Stay out of moldy buildings

Very Helpful: Rinsing sinuses

Somewhat Helpful: Vitamin C (1000-2000 mg per day), Vitamin D; Zinc; Elderberry; Ginger; Acetaminophen; Bathe and Change clothes; Sun exposure; Gargling

Don’t Know: Curcumin; Alcohol; Citrus Fruit; Electrolyte beverages; Garlic; Hot peppers; Onions; Stay warm; Take warm/hot baths

 

Anna

Patient Number: 23

Current Condition: I feel totally recovered

Severity Score: 44

Time Since Onset: 81 days

Onset Location: Glasgow, UK

Prior Locations:  Nashville, TN; Greensboro, NC; West Virginia; London, UK

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 1/10/20

Lung Date: 1/14/20

Lung Symptom Lag: 4 days

Lung Severity: Severe

High Fever:  Moderately problematic elevated temperature

Bedridden During Illness:  Not really bedridden but slept a great deal

Relapse: I have experienced improvements without substantial relapse

Duration:  Very severe – 1 day; Severe – 1 day; Moderate – 7 days; Mild – 5 days

Initial Symptom: Exhaustion; Cough

Very Severe Symptoms: Wet cough

Severe Symptoms: Runny/stuffy nose; Generally feeling terrible

Moderate Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Dry cough; Sore/painful throat; Loss of appetite; Elevated temperature; Feverish feelings; Chills; Muscle aches; Bone pain; Joint pain; Tiredness

Mild Symptoms: Lung/chest pressure; Headache; Sore voice; Dehydration; Vomiting; Nausea; Pain when moving body parts; Weakness

Not An Issue: Pneumonia; Bronchitis; Difficulties swallowing; Diarrhea; Loss of smell; Loss of taste; Abdominal pain; Blue lips or face; Sneezing; Sleepiness

Additional Symptoms: Vomiting up phlegm; Coughing so hard that I couldn’t breathe

Suspect Illness (compared to colds/flus):  Different symptoms, more severe

Practitioner:  Discussed. Given no information really. COVID-19 hadn’t really become a problem in the UK yet when I was there, so I was treated for my asthma and allergies since I had had a flu shot.

Decade Born: 1990’s

Gender: Female

Living: House

Previous Colds/Flus:  Several per year

Blood Pressure:  Normal (no medication)

Chronic Conditions:  ADD/ADHD, Asthma, Food Sensitivities, Allergies, Generalized Anxiety Disorder, Hypermobility Sydrome

Worst Neurological:  Moderate

ME/CFS:  Very Severe – Muscle/Joint Pain; Severe – PEM, Cognitive, Unrefreshing Sleep; Mild – OI, Headaches, Sensitivities

Most severe activity level: Rarely could go out but not bedridden

Recent activity level: Could be active 50 hours per week

Mold Avoidance: Made some effort, not sure if health improvements

Mold Avoidance Skill: Not sure

Mold Exposure: Not sure

HH Member #1:  1990’s; No chronic illness; Moderately severe acute illness with lung symptoms

Very Helpful: Vicks VapoRub

Somewhat Helpful: Other essential oils; Acetaminophen; Aspirin; Cough drops; Advil; Take warm/hot baths; Rinsing sinuses

No Effect: CBD; Echinacea; Elderberry; Melatonin; Electrolyte beverage; Cortisol/cortisone;

Harmful: Non-prescription cough syrup

Don’t know: Vitamin C; Vitamin D;

Additional Treatment Comments: I also took over the counter cough medicine, but it made it worse, so that I would cough until I vomited.

 

Susan

Patient Number: 26

Current Condition: I feel a little better but not recovered

Severity Score: 61

Time Since Onset: 76 days

Onset Location: Tucson, AZ

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date:  1/16/20

Lung Date: 1/23/20

Lung Symptom Lag: 7 days

Lung Severity: Severe problem

High Fever: 100-101 (Usually lower than normal range)

Bedridden During Illness:  Not really bedridden but slept a great deal

Relapse: I have experienced improvements without substantial relapse

Duration:  Severe – 2 weeks; Moderate – 2 weeks; Mild – 2 weeks

Initial Symptom: Sore throat; Dry cough; Headache; Muscle/joint pain

Very Severe Symptoms: Lung/chest pain; Tiredness

Severe Symptoms: Difficulty breathing; Lung/chest pressure; Muscle aches; Bone pain; Joint pain; Weakness; Sleepiness; Generally feeling terrible

Moderate Symptoms: Shortness of breath; Dry cough; Wet cough; Sore/painful throat; Loss of smell; Loss of taste; Elevated temperature; Feverish feelings; Chills; Pain when moving body parts

Mild Symptoms: Pneumonia; Bronchitis; Headache; Sore voice; Diarrhea; Nausea; Loss of appetite; Runny/stuffy nose; Sneezing

Not An Issue: Difficulty swallowing; Dehydration; Vomiting; Abdominal pain; Blue lips or face;

Additional Symptoms: Sudden congestion of upper lungs. Had to sleep 14-16 hours every night

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over

Practitioner:  Discussed on phone or Internet.  Diagnosis: Probable COVID-19

Decade Born: 1950’s

Gender: Female

Living: Apartment

Previous Colds/Flus:  One every couple of years

Blood Pressure:  High (taking medication)

Chronic Conditions:  ADD/ADHD; Autoimmune; Chronic/Post Lyme; Diabetes; Fibromyalgia; Food sensitivities; Heart disease; Lung disease; ME/CFS; MCAS; MCS; Toxic Mold Illness; Seizures

Worst Neurological:  Moderately severe

ME/CFS:  Very Severe – Unrefreshing Sleep; Sensitivities; Severe – PEM, Cognitive; Moderate – Muscle/Joint Pain; Mild – OI, Headaches

Most severe activity level: Basically bedridden but could participate in conversations

Recent activity level: Rarely could go out but not bedridden

Mold Avoidance: Made big effort, improved somewhat

Mold Avoidance Skill: Extremely good

Mold Exposure: Very clear

Critically Important: Citrus fruits; MCT or coconut oil; Rest; Stay out of moldy buildings; Take warm/hot baths; Coffee enemas

Very Helpful: Vitamin C (Vitamin Code, 3000 mg, plus juicing); Vitamin D; Iodine; Marijuana; Garlic; Ginger; Onions; Raw honey; Bathe and change clothes frequently; Reduce stress; Stay warm; Sun exposure; Gargling (hydrogen peroxide alternating with oil pulling); Rinsing sinuses

Somewhat Helpful: Spend time outdoors in good locations

Don’t know: Selenium; Echinacea

Additional Treatments: Rebounding (at least 5x daily for 5-15 minutes. Very helpful for my congested lungs. Performed postural lung drainage positions on my bed, chair and rebounder. Epsom salt/baking soda baths in very hot water for 60-90 minutes every other day.

Additional Comments: I started isolating myself in December 2019 due to my medical history. I increased my detox with CSM, charcoal, & GI Detox. I increased coffee enemas to twice a week, instead of weekly. I added whole food Vitamin C up to 3 grams daily. I increased my Vitamin B-12 injections to twice a week, instead of weekly. To drain my lungs, I performed postural drainage positions, using my bed, chair, & rebounder. To break up my congested lungs, I jumped on my rebounder about 5 times a day. It helped me to cough up some phlegm. My Dr only suggested adding the Vitamin C to my supplements. The other treatments I decided to do in order to stay out of the hospital. As an RN for 40 years who performed many respiratory treatments on patients, I know how contaminated hospitals are & wanted to stay away. There were 3 nights with severe lung pain, that I thought about driving to the ER, but I didn’t. I experienced about 4 weeks of illness, followed by 6 weeks of extreme fatigue. Worst symptom was the lung pain. I still need to sleep 11-14 hours every night. I’m thinking the Covid-19 might have reactivated the EBV?

 

Jennifer

Patient Number: 27

Current Condition: I feel mostly recovered

Severity Score: 66

Time Since Onset: 66 days

Onset Location: Phoenix, AZ

Prior Locations:  Washington D.C.

Chronic Illness History: None

Mold Avoidance: No

Onset Date: 1/20/20

Lung Date: 1/25/20

Lung Symptom Lag: 5 days

Lung Severity: Severe

High Fever:  100-101 F (usually normal)

Bedridden During Illness:  Almost totally bedridden

Relapse: I got somewhat better but then had a substantial relapse. (On one or two days, I felt well enough to move about the house and do some work.  But then the symptoms came back strongly and the cough was worse.)

Duration:  Very severe: 1-2 days;  Severe: 7-10 days; Moderate: 7-10 days; Mild: 7-10 days

Initial Symptom: The initial symptoms (congestion and mild sore throat) appeared on the afternoon of 1/20/20. But, on the evening of 1/18/20, I started to feel some nondescript symptoms of illness like muscle pain, tired, and irritability. By 1/21/20, I was feeling more tired. On 1/22/20, the sore throat became significantly worse. By 1/23/20, I had a fever, sore throat, exhaustion, loss of appetite.

Very Severe Symptoms: Sore/painful throat; Difficulties swallowing; Weakness; Tiredness; Generally feeling terrible

Severe Symptoms: Dry cough; Wet cough; Headache; Sore voice; Muscle aches

Moderate Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Lung/chest pressure; Loss of appetite; Loss of smell; Loss of taste; Elevated temperature; Feverish feelings; Chills; Bone pain; Joint pain; Runny/stuffy nose; Sleepiness

Mild Symptoms: Dehydration; Pain when moving body parts; Sneezing

Not An Issue: Pneumonia; Bronchitis; Diarrhea; Vomiting; Nausea; Abdominal pain; Blue lips/face;

Suspect Illness (compared to colds/flus):  Different symptoms, more severe, harder to get over

Practitioner:  The first provider diagnosed flu but did not do a flu test. The second provider (at the same medical facility) questioned the flu diagnosis but also did not perform a test. At that second visit, I did get a chest xray, which was negative.

Decade Born: 1960’s

Gender: Female

Living: House

Previous Colds/Flus:  1-2 per year

Blood Pressure:  Normal (not taking medication)

Chronic Conditions:  None, but have had high stress levels over the past year.

Worst Neurological:  Mild

ME/CFS:  Moderate – Muscle/joint Pain; Unrefreshing Sleep;  Mild – Sensitivities;  Not a Problem – PEM, Cognitive, OI, Headaches

Most severe activity level: I could work or be active 50 hours a week or more

Recent activity level: I could work or be active 50 hours a week or more

Mold Avoidance: Not pursued

HH Member #1:  2000’s; No chronic conditions; Had acute illness without significant lung issues

Somewhat Helpful: Cough syrup (prescription), Cough drops,

No Effect: Antiviral drugs (Tamiflu), Vicks VapoRub, Rest, Stay warm, Rinsing sinuses (saline)

Don’t know: Vitamin C, Vitamin D, Echinacea, Elderberry, Probiotics, Citrus fruit, Garlic, Ginger, Onions, Azithromycin, Bathe and change clothes frequently, Reduce stress

Additional Comments: I have never in my life felt as sick as I did during my illness. The recovery took a long time. I still cough mildly a few times a day (over two months after the onset of the illness). At that time, no one suspected that it could be COVID19. But, now that we know more, I wonder if that is what I had. My teenager got sick about 1.5-2 weeks after I got sick, but her symptoms were more mild and looked more like a traditional virus. At the time, we thought that she had something different from what I had because the symptom picture was so much less severe.

 

Heather

Patient Number: 29

Current Condition: I feel mostly recovered

Severity Score: 80

Time Since Onset: 63 days

Onset Location: Las Cruces, NM

Chronic Illness History: Moderate

Mold Avoidance: Somewhat

Onset Date: 1/27/20

Lung Date: 1/28/20

Lung Symptom Lag: 1 day

Lung Severity: Very severe problem

High Fever: 101-102 (usual lower than normal)

Bedridden During Illness: Almost totally bedridden

Relapse: Experienced improvement without relapse

Duration: Very severe – 6; Severe – 4; Moderate – 2; Mild – 7

Initial Symptom: Sore throat and cough

Very Severe Symptoms: Difficulty breathing; Shortness of breath; Dry cough; Bronchitis; Elevated temperature; Feverish feelings; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Weakness; Tiredness; Sleepiness; Generally feeling terrible

Severe Symptoms: Lung/chest pain; lung/chest pressure; Loss of appetite

Moderate Symptoms: Headache; Sore/painful throat; Difficulties swallowing; Dehydration; Feelings of nausea

Mild Symptoms: Sore voice

Not An Issue Symptoms: Wet cough; Pneumonia; Diarrhea; Vomiting; Loss of smell; Loss of taste; Abdominal pain; Blue lips or face; Runny/stuffy nose; Sneezing

Suspect Illness (compared to colds/flus): Harder to get rid of

Practitioner: Teledoc first, then in person. The teledoc diagnosed me with flu based on symptoms and fever of 101.7. A week later my primary doctor diagnosed me with bronchitis. I was running a low-grade fever of 99.7.

Decade Born: 1970’s

Gender: Female

Living: RV with Plumbing

Previous Colds/Flus: Once every couple of years

Blood Pressure: Normal (taking medication to lower)

Chronic Conditions: Chronic/Post Lyme; Fibromyalgia; ME/CFS; MCS; Psychiatric Issues; Gastritis/GERD; Herniated Disks; Plantar Fasciatis; Seasonal airborne allergies; COPD; Major depressive disorder; Anxiety disorder; PTSD; Insomnia

Worst Neurological: Moderate

ME/CFS: Very Severe – PEM, Unrefreshing Sleep; Severe – Muscle/Joint Pain, Sensitivities; Moderate – Cognitive; Mild – Headaches; Not a Problem – OI

Most severe activity level: Could work or be active 30 hours a week

Recent activity level: Could work or be active 30 hours a week

Mold Avoidance: Made some effort, improved somewhat

Mold Avoidance Skill: Fairly good

Mold Exposure: Mostly clear

HH Member #1: 1970; No health conditions; No acute illness

Medical treatment: I received a prescription for Tamiflu, predisone, and Symbicort. After seeing my primary doctor, I received Z-pack and started noticing improvement within about 3 days. He also provided me with a nebulizer treatment.

Critically Important: Azithromycin

Very Helpful: Nebulizer

Somewhat Helpful: Acetaminophen; Cough drops; Vicks VapoRub; Gargling (salt water and silver)

No Effect: Vitamin C (500 mg, 3x per day); Vitamin D; Selenium; CBD; Marijuana; Colloidal silver (gargled then swallowed); Melatonin (5 mg); Citrus fruits; Garlic; Ginger; Hot peppers; Onions; Raw honey; Antiviral drugs (Tamiflu); Cough syrup (non-prescription); Rest; Stay out of moldy buildings; Stay warm; Sun exposure; Take warm/hot baths

Additional Treatments: Symbicort provided temporary relief

Additional Comments: This was sickest I’ve been since Lyme disease and I never had that feeling of drowning in my lungs ever – not that severe.

 

Chris

Patient Number: 31

Severity Score: 65

Onset Location: Fairview/Nashville, TN

Time Since Onset: 65 days

Onset Date: 1/29/20

Lung Date: 1/30/20

Lung Symptom Lag: 1 day

Lung Severity: Severe problem

High Fever: Severely problematic elevated temperature

Initial Symptom: Pressure below chest; fatigue; Weakness; Projectile Vomiting; Chills; Fever; Eyelids aching; Ribs aching; Heart racing

Very Severe Symptoms: Nausea; Generally feeling terrible

Severe Symptoms: Feelings of lung or chest pressure; Headache; Dehydration; Vomiting; Abdominal pain; Elevated temperature; Feverish feelings; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Weakness; Tiredness

Moderate Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Loss of appetite

Mild Symptoms: Dry cough; Wet cough; Sore/painful throat; Difficulties swallowing; Diarrhea; Runny/stuffy nose; Sneezing

Not An Issue Symptoms: Pneumonia; Bronchitis; Sore voice; Loss of smell; Loss of taste; Blue lips or face; Sleepiness

 

Shannon

Patient Number: 43

Current Condition: I feel mostly recovered

Severity Score: 53

Time Since Onset: 41 days

Onset Location: Seattle, Washington

Chronic Illness History: Severe

Mold Avoidance: Somewhat

Onset Date: 2/10/20

Lung Date: 2/28/20

Lung Symptom Lag: 18 days

Lung Severity: Very Severe

Bedridden Status: Mostly Bedridden

High Fever: Between 102-103

Relapse: I got somewhat better but had a substantial relapse (second time was much worse)

Duration: Very Severe Illness – 5 days

Initial Symptom: Fever

Very Severe Symptoms: Wet cough; Bronchitis; Headache

Severe Symptoms: Difficulty breathing; Shortness of breath; Lung or chest pain; Lung or chest pressure; Sore or painful throat; Dehydration; Tiredness; Generally feeling terrible

Moderate Symptoms: Dry cough; Vomiting; Loss of appetite; Elevated temperature; Feverish feelings; Weakness; Sleepiness

Mild Symptoms: Difficulties swallowing; Sore voice; Runny or stuffy nose

Not An Issue: Pneumonia; Diarrhea; Nausea; Loss of smell; Loss of taste; Abdominal pain; Blue lips/face; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Sneezing

Additional Symptoms: Choking on mucus

Suspect Illness (compared to colds/flus): Different symptoms; more severe; harder to get over

Practitioner: Saw, didn’t provide much information

Decade Born: 1970’s

Gender: Female

Living: House

Previous Colds/Flus: 1-2 per year

Blood Pressure: Normal (no medicines)

Chronic Conditions: ADD/ADHD; Food sensitivities; MCAS; POTS; Toxic mold illness; Toxic levels of lead

Worst Neurological: Very Severe

ME/CFS: Very severe – Sensitivities; Severe – PEM, Cognitive; Moderate – OI, Unrefreshing Sleep; Not A Problem – Headaches, Muscle/Joint Pain

Most severe activity level: 10 hours/week

Recent activity level: 10 hours/week

Mold Avoidance: Made big effort (health had gotten worse)

Mold Avoidance Skill: Extremely good

Mold Exposure: Not clear at all

HH Member #1: 2010’s; ASD, MCAS, Lead load, PANDAS; Had mild illness with lung symptoms

Medical treatment: Two rounds of antibiotics (helped); inhaler (helped); muscle densensitization for airborne allergens (helped); prescribed cough pills (didn’t take)

Critically Important: Electrolyte beverage; Cooked onions + mushrooms; Azithromycin; Other antibiotics; Cough drops; Vicks VapoRub; Gargling (salt); Nebulizer (Arbutrol)

Very Helpful: Vitamin C (3000 mg/day); Ginger; Non-prescription cough syrup; Rest; Spend time in good locations; Stay out of moldy buildings; Sun exposure; Take warm/hot baths (Epsom salts); Magnesium

Somewhat Helpful: Raw honey

No Effect: Bathe and change clothes frequently

Harmful: Elderberry, Probiotics

Don’t know: Vitamin D; Reduce stress; Stay warm

 

Linda

Patient Number: 46

Current Condition: I feel a little better but not recovered.

Severity Score: 75

Time Since Onset: 37 days

Onset Location: Indianapolis, IN

Chronic Illness History: Moderate

Mold Avoidance: Yes

Onset Date: 2/14/20

Lung Date: 2/20/20

Lung Symptom Lag: 6 days

Lung Severity: Severe problem

High Fever: 102-103 (Usual temperature low)

Bedridden: Almost totally bedridden

Relapse: Felt like basically recovered and then relapsed

Duration: Severe – 28 days; Moderate – 5 days; Mild – 2 days

Initial Symptom: Chest tightness; Shortness of breath; Depression

Very Severe Symptoms: Wet cough; Weakness; Tiredness

Severe Symptoms: Difficulty breathing; Shortness of breath; Lung/chest pain; Lung/chest pressure; Dry cough; Bronchitis; Elevated temperature; Feverish feelings; Chills; Muscle aches; Bone pain; Joint pain; Generally feeling terrible

Moderate Symptoms: Pneumonia; Dehydration; Abdominal pain; Blue lips/face; Pain when moving body parts; Runny/stuffy nose; Sneezing; Sleepiness

Mild Symptoms: Headache; Sore/painful throat; Difficulties swallowing; Difficulties talking; Diarrhea; Feelings of nausea; Loss of appetite; Loss of taste

Not An Issue: Vomiting; Loss of smell

Additional Symptoms: It has been over 5 weeks. Still having chest pain, cough not as severe, weakness, fatigue, shortness of breath and rapid pulse.

Suspect Illness (compared to colds/flus): Different symptoms; more severe; harder to get over

Practitioner: Was seen on three different visits. Given diagnosis of bronchitis, probable influenza but no swabs were done, abnormal chest X-ray. After seeing an integrative medicine doctor, was given an injection for my immune system which greatly improved symptoms within two days. Was told I did not meet guidelines for COVID-19 testing.

Decade Born: 1950’s

Gender: Female

Living: House

Previous Colds/Flus: Rarely/Never

Blood Pressure: High (taking medication)

Chronic Conditions: Autoimmune; Fibromyalgia; Food sensitivities; Toxic mold illness; Common variable immune deficiency

Worst Neurological: Moderate

ME/CFS: Very Severe – Unrefreshing Sleep, Sensitivities; Severe – PEM, Cognitive, OI, Muscle/Joint Pain; Moderate – Headaches

Most severe activity level: Totally bedridden, rarely could read

Recent activity level: 20 hours week

Mold Avoidance: Big effort, improved somewhat

Mold Avoidance Skill: Fairly good

Mold Exposure: Mostly clear

HH Member #1: 1952; Kidney stones, IBD, Heart disease; Mild acute illness with lung symptoms

Critically Important: Reduce stress

Very Helpful: Vitamin C (2000 mg); Zinc (Zinc chelate 25 mg); CBD; Curcumin; Melatonin (20 mg); Rest; Stay out of moldy buildings; Sun exposure; Take warm/hot baths

Somewhat Helpful: Vitamin A; Vitamin D; Iodine; Elderberry; Oregano oil; Other essential oils (topical thyme oil; ingested oregano oil); Garlic pills; Marijuana; Colloidal silver (ingested); Probiotics; Garlic; Ginger; Onions; Other antibiotic drugs (Doxy 100 mg); Acetaminophen; Cough syrup (non-prescription); Vicks VapoRub; Coffee enemas; Gargling (salt water with oregano oil); Rinsing sinuses (sodium chloride with oregano oil)

No Effect: Stay warm; Nebulizer (Albuterol)

Harmful: Cortisol or cortisone

Don’t know: MCT or coconut oil; Bathe and change clothes frequently

Additional Treatments: I was given sub q Thymosin A to boost immune system week number four of illness

Exposure Suspicion: Went to a large medical center for a routine non urgent office visit on 2/10/2020. The nurse stated he was getting sick. His nose was dripping as he took my vital signs. He blew his nose multiple times and did not wash hands after blowing nose. He touched me to do vital signs.

 

Maria

Patient Number: 52

Current Condition: I feel a little better but not recovered

Severity Score: 43

Time Since Onset: 28 days

Onset Location: Tuscany, Italy

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 2/23/20

Lung Date: 2/25/20

Lung Symptom Lag: 2 days

Lung Severity: Severe problem

High Fever: 100-101 (usually lower than normal)

Bedridden During Illness: Almost totally bedridden

Relapse: I got somewhat better but then had a substantial relapse. (Some days I felt better, I had good energy, but then the next day I felt very tired again and had to sleep 12 hours or more. It seems to keep coming and going, but I know that is also normal for me with viral infections. It seems hard for my body to get rid of them completely and it usually takes me several weeks.)

Duration: Very severe – 2; Severe – 15; Moderate – 7; Mild – 5

Initial Symptom: First I was feeling extremely tired and had shortness of breath. I was sleeping 12 hours a day or more.

Severe Symptoms: Difficulty breathing; Shortness of breath; Loss of appetite; Tiredness; Sleepiness;

Moderate Symptoms: Pneumonia; Bronchitis; Headache; Feelings of nausea; Elevated temperature; Feverish feelings; Chills; Weakness

Mild Symptoms: Lung/chest pain; Dry cough; Wet cough; Sore/painful throat; Difficulties swallowing; Loss of smell; Loss of taste; Abdominal pain; Muscle aches; Pain when moving body parts; Runny/stuffy nose; Generally feeling terrible

Not An Issue Symptoms: Lung/chest pressure; Sore voice; Dehydration; Diarrhea; Vomiting; Blue lips/face; Bone pain; Joint pain; Sneezing

Suspect Illness (compared to colds/flus): Different symptoms, more severe

Practitioner: Not seen. (Don’t have primary care provider; concerned about exposure to infections; concerned about exposure to mold/chemicals; doubt practitioner could help; avoid healthcare practitioners in general)

Decade Born: 1980’s

Gender: Female

Living: House

Previous Colds/Flus: Several per year

Usual Blood Pressure: Very low (not taking medicine)

Chronic Conditions: Autoimmune illness; Fibromyalgia; ME/CFS; MCAS; MCS; POTS; Toxic mold illness

Worst Neurological: Very severe

ME/CFS: Very severe – PEM, Cognitive OI, Sensitivities; Severe – Headaches, Muscle/joint Aches, Unrefreshing Sleep

Most severe activity level: Basically bedridden but could read or participate in conversations

Recent activity level: Could work or be active 20 hours a week

Mold Avoidance: Big effort, had improved a great deal

Mold Avoidance Skill: Extremely good

Mold Exposure: Very Clear

Medical treatment: None

Critically Important: Zinc (Solgar Zinc Picolinate, 2-6 x 22 mg per day); Medicinal mushrooms; Stay warm

Very Helpful: Probiotics; Rest

Somewhat Helpful: Citrus fruits; Hot peppers; onions; Reduce stress; Rinsing sinuses (EM1 dissolved in water)

No Effect: Sun exposure

Additional Very Helpful Treatments: Staying earthed most of the time using an earthing sheet when in bed and an earthing band when up – seems to be critically important. Phosphatidylcholine and N-Acethyl.-cysteine also help to clear the lungs, but are not critical. I also took a multivitamin/multimineral which seems to help a little with energy levels but no major effect. I used a large dose of reishi mushrooms in the morning and in the evening, sometimes dissolved in lemon juice.

Additional Comments: I didn’t pursue changing my clothes and bedding often, though I think that would be helpful because I most often felt too tired and too cold to have a shower and do the laundry. Staying warm enough felt more important than showering and undressing was hard. Whenever I got cold for more than a few minutes my symptoms would intensify and I would enter a relapse stage (this also happened in the past with other viral infections). I have had a fever for nine continuous days so far, though it has never gotten past 38ºC. However, it is very rare for me to ever have high fevers (or fever at all). I have gotten a fever higher than 38ºC only once every 4 years or more, even when I have been extremely ill with an infection at other times. I don’t remember any time of my life when I have had a fever for so many consecutive days in a row. Usually, it lasts a day or two, then it goes away and comes back a few days later.

 

Andrea

Patient Number: 59

Current Condition: I don’t feel any better but the situation is stable

Severity Score: 65

Time Since Onset: 21 days

Onset Location: Kenmore, WA

Prior Locations: Seattle Area

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 03/2/20

Lung Date: 3/16/20

Lung Symptom Lag: 14 days

Lung Severity: Severe Problem

High Fever: 103-104

Bedridden During Illness: Was mostly/fully bedridden before getting the illness

Relapse: Got mostly better and then relapsed. Most symptoms were on and off.

Duration: Severe – 1-2 days; Moderate – 1-2 days; Mild – 14 days

Initial Symptoms: Very sore throat; Diarrhea; Fatigue

Very Severe Symptoms: Difficulty breathing; Sore/painful throat; Sore voice

Severe Symptoms: Shortness of breath; Headache; Diarrhea; Feelings of nausea; Abdominal pain; Muscle aches; Runny/stuffy nose; Weakness; Generally feeling terrible

Moderate Symptoms: Lung or chest pain; Lung/chest pressure; Difficulties swallowing; Dehydration; Loss of appetite; Elevated temperature; Feverish feelings; Chills; Bone pain; Joint pain; Pain when moving body parts; Tiredness

Mild Symptoms: Pneumonia; Sleepiness

Not An Issue: Dry cough; Wet cough; Bronchitis; Vomiting; Loss of smell; Loss of taste; Blue lips/face; Sneezing

Additional Symptoms: Insomnia

Practitioner: Discussed with practitioner.

Decade Born: (Blank)

Gender: Female

Living: House

Previous Colds/Flus: 1-2 per year

Suspect Illness (compared to colds/flus): Different symptoms; more severe; harder to get over

Usual Blood Pressure: Don’t Know

Chronic Conditions: Fibromyalgia; IBS; ME/CFS; MCAS; MCS; Toxic mold illness; Sinus infection; MARCONS; TMJ

Worst Neurological: Moderately Severe

ME/CFS: Very Severe – Cognitive, Headaches, Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities; Severe – PEM; Moderate – OI.

Most severe activity level: 20 hours/week

Recent activity level: 20 hours/week

Mold Avoidance: Made big effort, improved somewhat

Mold Avoidance Skill: Extremely Good

Mold Exposure: Very Clear

Medical Treatment: Oxygen, supplements.

Critically Important: Quercetin; Cough drops; Stay out of moldy buildings; Stay warm; Sun exposure; Take warm/hot baths; Rinsing sinuses (NeilMed)

Very Helpful: Other essential oils; Probiotics; Electrolyte beverage; Acetaminophen; Bathe and change clothes frequently

Somewhat Helpful: Elderberry; Garlic essential oil (Allimed); Garlic pills; Colloidal silver; Raw honey; Reduce stress; Rest; Gargling (HOCl); Nebulizer (HOCl; Glutathione; Silver)

No Effect: Vitamin D; Curcumin; Melatonin

Don’t know: Vitamin A; Vitamin E; Zinc (Pure Encapsulations 30 mg); Spend time outdoors in good locations

Additional Helpful Treatments: Low histamine diet; Liver support supplements; Epsom salt baths with lavender and eucalyptus; Rebounding for lymph; Oxygen tanks when couldn’t breathe; Watching things that make me laugh to de-stress; Taking it easy; Made meals and froze them before illness got very bad; Diffuser in room with distilled water and HOCl to keep sinuses open; Grapefruit seed extract for sinuses; Sprayed HOCl in throat

Comments: I never had a flu/cold/illness feel like this. The pain in chest/lungs was most scary. Felt like a boulder on my chest. Scary because I have severe MCAS and can’t go to a hospital even if I needed it or my throat would close up due to MCAS reactions to fragrance, cleaning products, etc. What was weird was the on and off nature of symptoms. Sore throat and red swollen tonsils the entire time but others symptoms fluctuated. Seems never ending – I have been sick for longer than two weeks now.

 

Jason

Patient Number: 62

Current Condition: I feel mostly recovered

Severity Score: 30

Time Since Onset: 32 days

Onset Location: Clarksville, TN

Prior Locations:  Franklin, NC (Spent 5 days in close contact with people from NC, TN, GA and Israel.)

Chronic Illness History: None

Mold Avoidance: Somewhat

Onset Date: 3/2/20

Lung Date: 3/4/20

Lung Symptom Lag: 2 days

Lung Severity: Severe problem

High Fever:  Moderately problematic elevated temparature

Bedridden During Illness:  Not really bedridden but slept a great deal

Relapse: I got somewhat better but then had a substantial relapse

Duration:  Severe – 7 days; Moderate – 7 days; Mild – 7 days

Initial Symptom: Fever; Dry cough; Extreme sore throat; Headache; Sinus congestion

Very Severe Symptoms: Sore/painful throat

Severe Symptoms: Dry cough; Sore voice; Generally feeling terrible;

Moderate Symptoms: Difficulties swallowing; Loss of appetite; Elevated temperature; Feverish feelings; Chills; Tiredness; Sleepiness

Mild Symptoms: Shortness of breath; Runny/stuffy nose; Weakness

Not An Issue: Difficulty breathing; Lung/chest pain, Lung/chest pressure, Wet cough, Pneumonia, Bronchitis; Dehydration; Vomiting; Nausea; Loss of smell; Loss of taste; Abdominal pain; Blue lips/face; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Sneezing

Suspect Illness (compared to colds/flus):  Different symptoms; more severe; harder to get over

Practitioner:  Saw practitioner. Strep throat test negative. Prescribed medication but did not help.

Decade Born: 1970’s

Gender: Male

Living: House

Previous Colds/Flus:  One every several years

Flu Shot: Definitely not

Blood Pressure:  Low (not taking medication)

Chronic Conditions:  No chronic conditions

Worst Neurological:  None of these

ME/CFS:  Not A Problem – PEM, Cognitive, OI, Headaches, Muscle/Joint Pain, Unrefreshing Sleep, Sensitivities

Most severe activity level: Could be active 60 hours a week

Recent activity level: Could be active 60 hours a week

Mold Avoidance: Made some effort, stayed about the same

Mold Avoidance Skill: Not able to do that

Mold Exposure: Not sure

HH Member #1:  1970’s; CIRS, Lyme, Hypothyroid;  Moderate acute illness with lung symptoms

Relapse: About 5-6 days in, started feeling better and like recovery was near. Lasted for 1-2 days before relapsing into the same symptoms again.

Additional Comments: This person is a very healthy individual, no known health problems (had recent physical), not affected in a noticeable way by mold, chemicals, etc. Gets sick with something mild very occasionally, and usually recovers in a couple of days max. This was the most severe virus or illness he has had in 20 years. The first time he has ever taken off work due to being sick. The first time he ever went to a doctor for being sick (in his adult life). After 5 weeks he is mostly recovered, with only some coughing still lingering. Blue Jean is the healthy husband of Silver Star.

 

James

Patient Number: 93

Current Condition: I feel a little better but not recovered.

Severity Score: 73

Time Since Onset: 10 days

Onset Location: Syracuse, UT

Chronic Illness History: Severe

Mold Avoidance: Yes

Onset Date: 3/24/20

Lung Date: 3/28/20

Lung Symptom Lag: 4 days

Lung Severity: Moderate problem

High Fever:  101-102F (usually normal)

Bedridden During Illness:  Mostly bedridden

Relapse: I got somewhat better but then had a substantial relapse. (Relapsing every other day for a week now.)

Duration:  Severe – 2 days; Moderate – 12 days; Mild – 5 days

Initial Symptom: Nighttime fevers

Very Severe Symptoms: Sore voice; Tiredness; Sleepiness; Generally feeling terrible

Severe Symptoms: Lung/chest pain; Lung/chest pressure; Bronchitis; Difficulties swallowing; Dehydration; Nausea; Abdominal pain; Feverish feelings; Weakness

Moderate Symptoms: Difficulty breathing; Shortness of breath; Wet cough; Headache; Sore/painful throat; Elevated temperature; Chills; Muscle aches; Bone pain; Joint pain; Pain when moving body parts; Runny/stuffy nose; Sneezing

Mild Symptoms: Dry cough; Loss of appetite; Loss of smell; Blue lips or face;

Not An Issue: Pneumonia; Diarrhea; Vomiting; Loss of taste

Additional Symptoms: Occasional severe mood swings, anxiety or depression.

Suspect Illness (compared to colds/flus):  More severe, harder to get over

Practitioner:  Not seen (Concerned about exposure to infections)

Decade Born: 1950’s

Gender: Male

Living: House

Previous Colds/Flus:  One or two per year

Flu Shot: Definitely not

Blood Pressure:  High (taking medication)

Chronic Conditions:  ADD/ADHD, ASD, Chronic/Post Lyme, Food Sensitivities, ME/CFS, MCAS, POTS, Toxic Mold Illness, TMJ, EDS

Worst Neurological:  Moderate

ME/CFS:  Severe – PEM, Cognitive, OI, Sensitivities; Moderate – Headaches, Muscle/Joint Pain, Unrefreshing Sleep

Most severe activity level: Basically bedridden but could participate in conversations

Recent activity level: Rarely could go out but not bedridden

Mold Avoidance: Made some effort, health improved somewhat

Mold Avoidance Skill: Very good

Mold Exposure: Somewhat clear

HH Member #1:  1960’s; MCS, bipolar; Moderately severe acute illness with lung symptoms

HH Member #2: 1980’s; ME/CFS, seizures, mood swings; Moderately severe acute illness with lung symptoms

HH Member #3: 1996; Autism, depression; Moderately severe acute illness with lung symptoms

 

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