Viral Illness Survey Summary – Chronic Illness Patients with Suspect Illness

 

 

Total Responses – 94

 

Very Severe, Severe, Moderate or Mild Symptoms:

Tiredness, 99%; Generally feeling terrible, 96%; Headache, 91%; Sleepiness, 91%; Weakness, 90%; Feverish feelings, 89%; Muscle aches, 89%; Sore throat, 82%; Runny nose, 81%; Chills, 79%; Shortness of breath, 77%; Lung pressure, 76%; Elevated temperature, 76%; Dry cough, 74%; Pain when moving body parts, 72%; Difficulty breathing, 71%; Loss of appetite, 70%; Lung pain, 68%; Joint pain, 68%; Nausea, 62%; Dehydration, 59%; Sneezing, 56%; Abdominal pain, 53%; Difficulties swallowing, 52%; Bone pain, 51%; Wet cough, 50%; Sore voice, 50%; Diarrhea, 47%; Loss of taste, 39%; Bronchitis, 31%; Loss of smell, 31%; Pneumonia, 20%; Vomiting, 16%; Blue lips or face, 5%

 

Very Severe, Severe or Moderate Symptoms:

Tiredness, 86%; Generally feeling terrible, 83%; Weakness, 70%; Muscle aches, 68%; Sleepiness, 67%; Headache,  64%; Feverish feelings, 60%; Shortness of breath, 52%; Sore throat, 51%; Chills, 51%; Lung pain, 50%; Dry cough, 50%; Runny nose, 50%; Difficulty breathing, 49%; Elevated temperature, 49%; Lung pressure, 48%; Pain when moving body parts, 47%; Joint pain, 43%; Loss of appetite, 37%; Bone pain, 34%; Dehydration, 31%; Wet cough, 30%; Nausea, 30%; Abdominal pain, 29%; Difficulties swallowing, 28%; Diarrhea, 26%; Sore voice, 23%; Bronchitis, 21%; Sneezing, 19%; Loss of smell, 16%; Pneumonia, 14%; Loss of taste, 13%; Vomiting, 4%; Blue lips or face, 2%

 

Very Severe or Severe Symptoms:

Tiredness, 51%; Generally feeling terrible, 46%; Sleepiness, 35%; Weakness, 34%; Muscle aches, 31%; Headache, 26%; Feverish feelings, 23%; Difficulty breathing, 20%; Runny nose, 20%; Lung pressure, 19%; Joint pain, 19%; Shortness of breath, 18%; Lung pain, 18%; Chills, 18%; Pain when moving body parts, 17%; Wet cough, 15%; Dehydration, 15%; Bone pain, 15%; Dry cough, 14%; Bronchitis, 14%; Sore throat, 14%; Nausea, 10%; Sore voice, 9%; Elevated temperature, 9%; Pneumonia, 7%; Difficulties swallowing, 7%; Loss of appetite, 7%; Abdominal pain, 7%; Diarrhea, 6%; Loss of taste, 6%; Loss of smell, 5%; Sneezing, 2%; Vomiting, 1%; Blue lips or face, 0%

 

Very Severe Symptoms:

Tiredness, 20%; Generally feeling terrible, 18%; Weakness, 13%; Wet cough, 12%; Sleepiness, 11%; Muscle aches, 9%; Feverish feelings, 7%; Chills, 7%; Difficulty breathing, 6%; Lung pain, 6%; Bronchitis, 6%; Headache, 6%; Sore throat, 6%; Sore voice, 6%; Joint pain, 6%; Shortness of breath, 5%; Bone pain, 5%; Pain when moving body parts, 5%; Lung pressure, 4%; Dry cough, 4%; Runny nose, 4%; Pneumonia, 3%; Dehydration, 3%; Elevated temperature, 3%; Difficulties swallowing, 2%; Nausea, 2%; Diarrhea, 1%; Loss of smell, 1%; Loss of taste, 1%; Abdominal pain, 1%; Sneezing, 1%; Vomiting, 0%; Loss of appetite, 0%; Blue lips or face, 0%

 

What symptoms did you experience during the first two days of the suspect illness? 

(Most common responses)

Sore throat, fatigue, fever, cough, headache, body aches, shortness of breath, congestion, nausea, runny nose

 

All in all, how problematic have lung symptoms (related to coughing, breathing or chest pain) been for you during the Suspect Illness?

7% – Very severe problem

16% – Severe

32% – Moderate

16% – Mild

19% – Very mild

10% – Not a problem

 

Compared to what things were like when the Suspect Illness was at its worst, how are you doing now?

19% – I feel totally recovered

26% – I feel mostly recovered

10% – I feel somewhat recovered

17% – I feel a little better but not recovered

8% – I don’t feel any better but the situation feels like it is stable

3% – I don’t feel any better and the situation feels like it is getting worse

8% – I feel basically recovered from the acute viral symptoms, but other chronic illness issues are worse than before I got the suspect illness.

7% – Other (All not recovered)

 

Please describe  the chronic illness issues that are worse?

(Asked only of those who said they were basically recovered but chronic issues were not back to baseline)

Fatigue, pain, asthma, depression, cough, abdominal pain, allergies, headaches, arthritis, digestive issues

 

Were you bedridden for a day or more as a result of the Suspect Illness?

12% – Totally bedridden

20% – Almost totally bedridden

15% – Mostly bedridden

27% – Not really bedridden but slept a great deal

24% – Not bedridden

2% – I already was mostly or fully bedridden before getting the Suspect Illness

 

To your knowledge, what was the highest body temperature that you experienced during the Suspect Illness?

1% – Higher than 104 F

2% – Between 103 and 104 F

13% – Between 102 and 103 F

12% – Between 101 and 102 F

14% – Between 100 and 101 F

16% – Between 99 and 100 F

19% – Lower than 99 F

23% – Don’t know

 

A normal body temperature is usually defined as being between 97.7 and 99.5 F. Prior to acquiring the suspect illness, what was your usual body temperature?

56% – Lower than the normal range

32% – Within the normal range

1% – Higher than the normal range

4% – Variable

7% – Don’t know

 

A relapse is when a person seems to be getting better from an illness but then gets substantially worse again. Which of these statements best describes your relapse experiences with the Suspect Illness?

7% – I have not yet experienced improvements

34% – I have experienced improvements without substantial relapse

31% – I got somewhat better but then had a substantial relapse

14% – I felt like I was basically recovered but then had a substantial relapse

14% – I’m not sure

 

Have you discussed the Suspect Illness with a physician or other licensed healthcare provider?

38% – Yes, I saw a practitioner

22% – Yes, I discussed with a practitioner via phone or Internet

40% – No

 

Did you receive a test for the coronavirus COVID-19?

84% – No, I have not received a test

9% – Yes, and the test results were negative

4% – Yes, and I am waiting for the results

1% – ART tested positive

 

Which of the following explains why you haven’t seen a healthcare practitioner for the Suspect Illness?

67% – Doubt that practitioner would be able to help

49% – Illness has not been severe enough

33% – Avoid healthcare practitioners in general

24% – Concerned about exposure to infections

21% – Concerned about exposure to mold or chemicals

15% – Too much trouble

15% – Don’t have primary care provider nearby

15% – Concerned about infecting others

12% – Don’t have primary care provider at all

12% – Concerned about being quarantined

12% – Concerned about out-of-pocket costs

12% – Feel too sick to make the effort

3% – Unable to arrange transportation to doctor or hospital

 

What is your gender?

90% – Female

10% – Male

 

What decade were you born?

2% – 1940’s

23% – 1950’s

25% – 1960’s

31% – 1970’s

13% – 1980’s

5% – 1990’s

1% – 2000’s

 

During the few months prior to getting the suspect illness, where had you been living or staying?

61% – House

24% – Apartment or condo

7% – Townhouse

6% – Hotels

5% – Vehicle without plumbing

3% – Tent

2% – RV with plumbing

1% – Shed/Garage

1% – Porch/Balcony

 

In recent years, not counting the Suspect Illness, how often on average have you gotten cold or flus?

13% – Several per year

31% – One or two per year

17% – One every couple of years

8% – One every several years

31% – Rarely or never

1% – Not sure

 

Compared to colds or flus that you have had in the past, what has the Suspect Illness been like for you?

74% – Different symptoms

62% – Harder to get over

51% – More severe

 

Had you received a flu shot at any time during the year or so prior to getting the Suspect Illness?

82% – No, I definitely did not receive a flu shot

18% – Yes, I definitely received a flu shot during that time

 

A normal blood pressure reading is often defined as between 100/60 and 120/80. Keeping that in mind, was your typical blood pressure before acquiring the suspect illness high, normal or low?

1% – Very high

11% – High

57% – Normal

17% – Low

1% – Very low

13% – Don’t know

 

Prior to acquiring the Suspect Illness, were you taking medication to raise or lower your blood pressure?

81% – No, not taking medication

17% – Yes, taking medication to lower

1% – Taking medication to raise

1% – Don’t know

 

Which of the following health conditions have you had at any point in your life?

78% – Toxic Mold Illness or CIRS

56% – Gluten or food sensitivities

44% – ME or ME/CFS

39% – Autoimmune

36% – MCS

34% – Chronic/Post Lyme

34% – MCAS

31% – Fibromyalgia

30% – IBS

22% – ADD/ADHD

20% – Asthma

18% – POTS

10% – Psychiatric

10% – IBD

3% – ASD

4% – Diabetes

3% – Lung disease

13% – None of the above

 

Please list any other illness conditions you have experienced.

(Most common responses)

Cancer

Thyroid issues

Adrenal insufficiency

Immune problems

Allergy

Arthritis

Insomnia

Endometriosis

Anxiety

Anemia

Bronchitis

 

Which of these psychiatric conditions have you experienced?

(Percentages are of all survey respondents)

8% – Major depressive disorder

8% – Anxiety disorder

4% – PTSD

2% – Obsessive-compulsive disorder

1% – Bipolar disorder

 

Now, please think back to any neurological problems you may have experienced during your life. These may have included memory problems, other kinds of cognitive impairments, psychiatric issues, seizures, convulsions, paralysis or any other kind of neurological problem. At their worst, how severe were these neurological problems?

17% – Very severe

30% – Moderately severe

26% – Moderate

11% – Mild

13% – I have not experienced those kinds of symptoms

3% – I’m not sure

 

Please think back to the six months when you were most sick with any kind of chronic illness issues. How much of a problem were the following symptoms for you at that time?

(% stating that the problems were at least moderate)

81% – Unrefreshing sleep

81% – Cognitive issues (difficulties thinking or remembering)

77% – Sensitivities to mold, chemicals, EMF’s or foods

75% – Feeling worse after activity or exercise

70% – Muscle or joint pain

55% – Difficulties with sitting or standing (due to POTS, OI or low blood pressure)

51% – Headaches

 

Please think back to the time in your life when you were most affected by any kind of neurological or other chronic illness issues. During that time, how much activity did your health regularly allow?

23% – Basically or fully bedridden

49% – Housebound or bedridden

63% – Could be active less than 20 hours per week.

85% – Could be active less than 40 hours per week

 

Please think back to the six months just prior to getting the Suspect Illness. During that time, how much activity did your health regularly allow?

0% – Basically or fully bedridden

7% – Housebound or bedridden

26% – Could be active less than 20 hours per week

53% – Could be active less than 40 hours per week

 

Have you made any effort to avoid environmental mold toxins?

66% – Made a big effort

20% – Made some effort

10% – Have not pursued that

5% – Not sure

 

Please think back to how you were feeling during the several months before getting sick with the Suspect Illness. All in all, had your health improved since you started avoiding mold?

(Asked of those who said they had made an effort to avoid mold.)

43% – It had improved a great deal

31% – It had improved somewhat

11% – It had stayed about the same

1% – It had gotten worse

8% – Not sure

6% – I was  not able to be avoiding mold then

 

How good are you at immediately sensing or guessing whether you are currently being exposed to environmental mold toxins that will turn out to be a problem for you?

(Asked of those who said they had made an effort to avoid mold.)

30% – Extremely good

28% – Very good

25% – Fairly good

10% – Not that great

6% – I’m not able to do that at all

1% – Not sure

 

During the Suspect Illness, how clear have you been of mold toxins that typically have a negative effect on you? 

(Asked of those who said they had made an effort to avoid mold.)

30% – Very clear

37% – Mostly clear

11% – Somewhat clear

8% – Not very clear

9% – Not clear at all

7% – Not sure

 

Are there any other household members to discuss?

60% – Yes

 

Of individuals with other household members discussed, this was the breakdown in terms of whether they had been sick with a recent acute viral-type illness with lung symptoms.

2% – Yes, with a very severe illness

30% – Yes, with a moderately severe illness

21% – Yes, with a moderate illness

15% – Yes, with a mild illness

11% – No, there was an illness but without lung issues.

15% – No, there was no illness.

6% – I’m not sure